×

Category Archives: Medicine

Calculator on top of graph paper with pen to the right

CBT and GET survey results published by Forward-ME Group

/ by / 0 Comment
In January 2019, a survey investigating the impact of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for people with ME, CFS or PVFS diagnoses in the UK was made available online. It was intended to provide up-to-date data on the impact these therapies have had on people who ...

GET and CBT are not safe for ME – summary of survey results

/ by / 0 Comment
Listen to the recording:  #MEAction UK Lay Summary of the 2019 Forward ME Group CBT & GET Survey Topline findings A new patient survey of 2274 respondents has confirmed that graded exercise therapy (GET) is harming a large majority of people with ME receiving this treatment in the UK. A majority of people ...
Photo of student taking notes

Australia: School Study on Teenagers with Chronic Fatigue Syndrome

/ by / 0 Comment
A recent study of Australian teenagers with chronic fatigue syndrome found CFS impacted their development of academic, cognitive and social skills. Students with CFS missed an average of 42% of classes over a term, 37% more than their healthy peers. The study recommends school staff be trained to understand chronic ...
Photo of Professor Don Staines

Meet the Scientists: Australia’s Prof. Don Staines

/ by / 0 Comment
‘Meet the Scientists’ is a series of interviews with researchers working on ME and chronic fatigue syndrome. We ask them about their current research and get to meet the people working to improve our health. The series introduces early career researchers through to interviewing scientists and clinicians who have been working ...

Get involved: support science and advocacy this April

/ by / 0 Comment
April is going to be an incredibly exciting month for advocacy and for research into ME! The NIH is hosting a conference on ME in early April along with a Young Investigators Workshop specifically geared towards early-career investigators with interest in ME.  Concurrently, there will be a Congressional lobbying push hosted ...

A loss to the ME community: Jonas Blomberg

/ by / 6 Comments
You can listen to this article read aloud by visiting #MEAction's Soundcloud here. It is with a heavy heart that we announce the sudden passing of Jonas Blomberg. Blomberg was an Emeritus Professor at the Department of Medical Sciences, Clinical Microbiology at Uppsala University in Sweden, active in scientific and medical research: one ...

Comment on Australia’s National Draft Report on ME/CFS – Open to Global Feedback

/ by / 1 Comment
Australia’s NHMRC has released the ME/CFS Advisory Committee’s draft report for public consultation. The public consultation process will remain open until Monday February 18, 2019 ...

Apply for Stanford Medicine X Conference as ePatient or Presenter – deadline Jan. 31st

/ by / 0 Comment
Stanford University hosts an annual academic conference, Medicine X, every September to bring together community stakeholders, innovators and leaders in health care to empower collaborative change. This year's Medicine X | Change conference will be held at Stanford University in Palo Alto, California on Sept. 20 - 22, 2019. Stanford describes ...

Sept & Oct — Research Roundup

/ by / 1 Comment
The end of September was a whirlwind! Between the CDC's website work, the CDC's awarding of a sole contract, the planning sessions for the NIH meeting, and the Stanford symposium, there wasn't much time to devote to breaking down the science.  If you'd like to see a quick run-down of ...

It has been an Intense Week!

/ by / 0 Comment
It Has Been A HUGE Week in the U.S.! This last week has been a bit of a whirlwind – we've never been busier! It's been a week of advancing the cause of health equality for people with myalgic encephalomyelitis through the launch of the Unrest continuing medical education program and the expansion of our US ...