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Category Archives: Medicine

Individuals who were lied to and misrepresented by Netflix’s Afflicted include (left to right): Jake, Pilar, Jamison, Jake & Bekah, Jill & Janine

Open Letter Demands Removal of Netflix’s “Afflicted” – Sign the Petition

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On September 18th, more than 40 writers, activists, artists, filmmakers, physicians, and scientists came together to write an open letter to Netflix to request that Afflicted be immediately removed from the service. "We are deeply concerned about its unethical treatment of its subjects and its many factual errors and omissions," states ...

Stop CDC from Hiring Shoddy Contractor for ME Treatment Guidelines!

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PETITION UPDATE (Tuesday, September 11, 2018) The CDC has posted an updated, competitive bid solicitation for the development of federal treatment guidelines for ME. The community outcry, and over 8,000 petition signatures, protesting the previous rigged, sole-source contract got the CDC's attention. Yet the solicitation is still only open through Thursday, September ...

Will the FDA Stand in the Way of Your ME Treatment? Take Action now!

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Suppose there was a substance that could help you, but before you learned about it, or you could find a doctor to prescribe it, the FDA banned it from the market, even though patients have successfully used it for decades. Or suppose there was a treatment that had helped your ...

CDC Revises Its Information on ME

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In September 2016, I attended a meeting at the Centers for Disease Control as #MEAction’s representative.  Also present were Dr. Ken Friedman, Dr. Mark VanNess, Mary Dimmock, Dr. Lucinda Bateman, Dr. Lily Chu, Wilhelmina Jenkins, Dr. Anthony Komaroff, Dr. Charles Lapp, Dr. Susan Levine, Dr. Dan Peterson, and many other ...

NICE Guideline for ME: #MEAction UK Responds to Second Draft Scope

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The National Institute for Health and Care Excellence (NICE) is in the process of updating its guideline for Myalgic Encephalomyelitis by October 2020. #MEAction UK has issued a response to the second draft scope for the ME/CFS Guideline.  The scope is a document which will provide the framework for the new ...

Mother Shares Heartbreaking Testimony about Sons with Severe ME

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This mother has participated in CFSAC meetings more than 20 times in an effort to get the Health and Human Services to take appropriate action to address this health crisis. Her two sons have suffered from severe Myalgic Encephalomyelitis for more than a decade. The photo was taken of her sons one month and ...

OMF: A look back on 2017 Highlights

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OMF presents a look back on their 2017 highlights in research, outreach, advocacy, recognition, and more ...

Activism 101: Educate Medical Providers about ME

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Most doctors, nurses and other healthcare providers belong to a medical association in order to connect to a community of their peers. These medical associations typically send out regular magazines, newsletters and emails about the latest news and topics of interest to the medical field. A great way to begin to ...

The Failure of Clinical Guidance for People with ME

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ME advocate Mary Dimmock has written a comprehensive report about the flawed science that led to the recommendation of cognitive behavioral therapy (CBT) and graded exercise therapy (GET) for people with Myalgic Encephalomyelitis.  The patient community has long reported these treatments to be ineffective and harmful, and, yet, health societies and ...

OMF Shares Resources to Help Children with ME/CFS Succeed in School

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Dr. Faith Newton, Deleware State University, has created several resources to help children with ME/CFS improve their educational outcomes including the newest piece, a sample physician's letter ...