Covid-19 Resources for People with ME

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Category Archives: Medicine

ME medical education module

New ME education module available for healthcare professionals

A new education module designed to teach healthcare professionals about ME has been released. Send the new module to your GP, using our email template. The module was created by the CMRC Medical Education group, led by Dr Nina Muirhead, and is available for free online. The Group includes patients, ...

Washington Post Editorial Says Some COVID-19 Patients Will Develop ME

The Washington Post published an editorial last Saturday about how researchers are warning that COVID-19 may lead to long-term, debilitating illnesses, like myalgic encephalomyelitis (ME), in some patients. The editorial was written by former Washington Post reporter, Brian Vastag, and #MEAction co-founder, Beth Mazur, both of whom have ME. Many ...

When POC Can’t Get a Diagnosis, Go Unseen

For decades, myalgic encephalomyelitis (ME) - also commonly called chronic fatigue syndrome - was erroneously portrayed as a white woman's disease in the media. Black people were told they can’t get this disease, and went unseen and undiagnosed. Studies finally confirmed what the ME community already knew: the disease was ...
Medical Education Event London #MEActionUK

Invite your Doctor to learn about ME – Medical Education Event in London

March 11 Update: After thoughtful deliberation, we have made the difficult but necessary decision to postpone our Medical Education event in London, originally due to take place on April 1 at the LSHTM. We know how much this means to the community, and we did not make this decision in ...

Meet the Scientist: Interview with Dr. Lucinda Bateman

Dr. Lucinda Bateman has treated over a thousand patients with chronic fatigue conditions since starting the Fatigue Consultation Clinic in 2000. She is the founder and Chief Medical Officer of the Bateman Horne Centre of Excellence (BHC) for ME/CFS and Fibromyalgia in Salt Lake City, Utah. In 2015, Dr. Bateman ...

Enrolling studies: Internet-Based Participation

What: Researchers at Southern Connecticut State University are currently enrolling individuals in a study that will examine an intervention app for people living with ME/CFS. This app monitors daily perceived and expended energy and fatigue levels. Participants will be asked to complete an online survey about their health history, ME/CFS ...

Celebrating Postcards to Doctors: Final Report

We're incredibly pleased to announce that we not only met but exceeded our initial goal of sending 6,000 postcards out into the world! And we could not have done it without you. As always, I am bowled over by our community's drive to fight for change. Check out our infographic ...

Danish Health Authority Refuses to Recognize WHO Definition for ME

The fight continues in Denmark for proper recognition and care for people with myalgic encephalomyelitis (ME). Last March in a huge victory for people with ME, Danish MPs unanimously agreed on a declaration that will recognise ME as a distinct disease, remove it from the “functional somatic syndromes” category, and ...

NeuroCognitive Research Institute is Back in Business, Assessing People with ME!

Mark and Marcie Zinn are once again conducting assessments and producing elaborate reports to help patients! ...

Host a Postcards to Doctors party this holiday season!

Host a Postcards to Doctors party this holiday season! And announcing: #MEAction's first Pinterest boards! Together, the #MEAction community has made the Postcards to Doctors initiative an incredible success: there have been approximately 5,500 requests for postcards to doctors across 43 states! We are so thankful to see people across ...