COVID-19 and Long haul COVID Resources

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Category Archives: Medicine

Photo of US ME/CFS Clinician website. Blue Banner with title at top and a question that reads What is ME/CFS?

All Doctors Should Go To This Website For ME Information!

We are thrilled to share that The US ME/CFS Clinician Coalition has launched a beautiful website to provide clinicians with expert information on the diagnosis and management of myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS). The website includes the basics of clinical management, diagnosis and management, comorbid conditions, and resources on ...

#MEAction New York Co-Hosts Free Webinar for Clinicians on September 30th!

#MEAction NY is co-sponsoring a free CME webinar Wednesday, September 30th, 2020 and we need to share widely so clinicians can know to register! DATE: Wednesday, September 30, 2020 12:00-1:00 EST Topic: Post-Viral Syndrome and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): What Every Clinician Needs to Know Speaker: David Kaufman, MD, ...
mayo clinic building

Mayo Clinic Removes GET and CBT from CFS Webpage

The Mayo Clinic recently removed harmful recommendations of Graded Exercise Therapy (GET) and Cognitive Behavioral Therapy (CBT) for myalgic encephalomyelitis (ME) from their website, a win for people with ME and their families. The site still contains problematic language and misleading information, but this recent change could help many individuals ...
Summer Update

Our Summer in Review: Advocacy and Education

What a Summer for Advocacy and Education! We know the summer isn’t over yet, but A LOT has been happening with ME advocacy and education in the United States and the United Kingdom, and we want to make sure you are up to date, in the loop, and ready for ...

Good Morning Britain gets it wrong on post-COVID treatment and ME

#MEAction UK has written a letter of complaint to Good Morning Britain in response to recent statements from Dr Hilary Jones on the programme, regarding the rehabilitation of long COVID patients. In his interview with Kate Garraway yesterday, Dr Jones recommended graded exercise as a strategy for those recovering from ...

Open letter demands action to safeguard people with ME, not just post-COVID patients

#MEAction UK have once again written to the National Institute for Health and Care Excellence (NICE) imploring them to act to safeguard people with ME from harm, after their recent statement cautioning that the recommendation of graded exercise therapy should not be assumed to apply to patients with post-COVID symptoms ...
Reflection of woman with COVID-19 virus imposed on top

Graded exercise therapy not recommended for post-COVID fatigue, say NICE

The National Institute for Health and Care Excellence (NICE) have released a document entitled “interim findings”, stating that the recommendation of graded exercise therapy for mild and moderate ME/CFS should not apply to people with fatigue following COVID-19. They note that the existing guideline was published in 2007, many years ...
ME medical education module

New ME education module available for healthcare professionals

A new education module designed to teach healthcare professionals about ME has been released. Send the new module to your GP, using our email template. The module was created by the CMRC Medical Education group, led by Dr Nina Muirhead, and is available for free online. The Group includes patients, ...

Washington Post Editorial Says Some COVID-19 Patients Will Develop ME

The Washington Post published an editorial last Saturday about how researchers are warning that COVID-19 may lead to long-term, debilitating illnesses, like myalgic encephalomyelitis (ME), in some patients. The editorial was written by former Washington Post reporter, Brian Vastag, and #MEAction co-founder, Beth Mazur, both of whom have ME. Many ...

When POC Can’t Get a Diagnosis, Go Unseen

For decades, myalgic encephalomyelitis (ME) - also commonly called chronic fatigue syndrome - was erroneously portrayed as a white woman's disease in the media. Black people were told they can’t get this disease, and went unseen and undiagnosed. Studies finally confirmed what the ME community already knew: the disease was ...