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Category Archives: Human rights

New York #MEAction Protests Per Fink at Columbia University – Here’s what happened

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The protest against the Danish physician, Per Fink, last week demonstrates how our community takes action in a variety of ways to fight for people with myalgic encephalomyelitis (ME). 1) #MEAction New York organized a protest outside the conference where Fink was presenting on his unscientific theory of Bodily Distress ...

Join the fight against stigma and pseudoscience in New York

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This weekend, the New York State Psychiatric Institute is hosting a conference on psychosomatic illness at Columbia University Medical Center -- and they invited Per Fink to speak.  If you have watched Unrest, you know that Fink’s clinic was responsible for the involuntary institutionalization of Karina Hansen, a Danish young ...
young white woman in group of protestors turns head to look into camera. Holds a sign "Millions Suffering!"

Per Fink is coming to US this week! Here’s 3 actions you can take

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The Danish physician, Per Fink, is traveling to the United States to speak about his unscientific and dangerous idea that myalgic encephalomyelitis (ME) is a psychosomatic illness. Per Fink has been invited to speak at a psychosomatic conference at Columbia University in New York City on Saturday, Oct. 20th. Columbia University will reward medical providers who come to hear Per ...

A Tribute to Mag Friel

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I know hardly anything of Mag’s life before she fell ill in 1993. We were witnesses to each other’s ‘now’. There are clues though: when I sent our shoes to the #MillionsMissing protest, Mag selected a pair of dainty black Velours stiletto heels with pointed toes. Imagine her staccato gait ...

A tribute to ‘Bob’ – Robert Courtney, ME activist, fundraiser, researcher, and friend

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Following the tragic death of Robert Courtney, some of his friends created the tribute below, and provided the message that precedes it. We at #MEAction are pleased to reproduce both here. We, some of Bob's many friends, have put together this tribute to him. We do not think it is ...

US: Read Lily Chu’s CFSAC Testimony

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Thank you for this opportunity to address the CFS Advisory Committee. I am writing to in response to the call for comments regarding how the US government might engage members of the ME/CFS community, especially patients and their lay supporters, in addressing and solving the clinical, research, educational, and public ...

Donate to Karina’s Legal Fund

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Over the past several years, many of us with and without ME have looked on in horror as Karina Hansen was forcibly removed from her home and institutionalized.  This was in part due to Denmark's decision to rename myalgic encephalomyelitis "bodily distress syndrome" and classify it as a psychological illness. The ...

Thoughts on NIH speakers from Dr. Zaher Nahle

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It was truly unsettling to learn about the news of an invited speaker lecturing at the National Institutes of Health (NIH) on November 9, 2016. For decades, the speaker has been a staunch adversary of studying the pathophysiology of ME/CFS and refuses to acknowledge its root cause. I have written ...

#MEAction Network UK’s polling results for the proposed MEGA study

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Last week, we asked for your thoughts on the proposed MEGA study. The poll ran for 5 days and 154 of you lent your voice to the concerns raised by many. Here are the results of the vote: "The study must include severely and moderately affected patients." 140 of 154 ...

Increasing Efficacy of the CDC’s ME/CFS Educational Program

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INTRODUCTION The Centers for Disease Control (CDC) is revising and creating new educational materials for its Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) educational program. The hope is that this fourth try at producing ME/CFS educational materials will result in equality of care for ME/CFS patients and they will, for the first time, ...