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Category Archives: Community

#MEAction State Chapters are Trailblazing Change for ME across the United States

As we enter into 2020, we want to take a moment to recognize all the hard work our State Chapters accomplished in 2019 for myalgic encephalomyelitis (ME). The tenacity and commitment of our state leaders and members is awe-inspiring. #MEAction Colorado introduced a resolution for ME before the Rotary Club ...

We Celebrate the Life and Legacy of a Warrior for ME

It is with heavy hearts that we share the passing of ME community advocate, Cindy Siegel Shepler. Cindy lived with myalgic encephalomyelitis (ME) and multiple other health issues. She dedicated much of her increasingly limited time and energy to advocacy, increased awareness, and increasing research funds for ME. She had ...

Cards for Koroshetz: Send a Holiday Card to NIH Demanding Action!

This holiday season, the #MEAction community plans to flood the mailbox of the U.S. National Institutes of Health (NIH) with holiday cards calling for NIH NINDS Director, Dr. Walter Koroshetz, to take immediate ACTIONS to end the crisis of myalgic encephalomyelitis (ME). We need your help! Take action with us: ...

Your #MEAction guide to the holidays: with Pinboards!

The holidays are a stressful time. Between gift-giving (and buying), travel, cooking, decorating, and guests in the home – not to mention winter colds, increased heating bills, and challenges in local travel like snow and icy roads – it’s no wonder that many people emerge from the hazy shade of ...

#MEAction’s Guide to Weathering the Holidays

Note: if you prefer to download this list as a pdf you can download it by clicking here. Make a list of whatever you can do in advance and a schedule for completing your tasks with plenty of wiggle-room.The holidays are often jam-packed with tasks. Sit down nowish and make ...

WHY WE CARE: Directly Supporting People with ME

Erica Verrillo is founder of The American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society (AMMES), which provides direct assistance (rent, clothing, food, etc.) to people with ME who are in crisis in the U.S., as well as resources to the ME community. A generous donor has offered a matching donation ...

Host a Postcards to Doctors party this holiday season!

Host a Postcards to Doctors party this holiday season! And announcing: #MEAction's first Pinterest boards! Together, the #MEAction community has made the Postcards to Doctors initiative an incredible success: there have been approximately 5,500 requests for postcards to doctors across 43 states! We are so thankful to see people across ...

A Trial of ME – Elizabeth’s Story

This is me, my story, I am one of the millions missing. I may not look ill to you, but if you see me, it will be because I am having a ‘good’ day because I am well enough to be able to get dressed and leave the house. The ...

Postcards to Doctors Featured Artist: Lia Pas

#MEAction’s Postcards to Doctors initiative has continued to be an incredible success! Thanks to the hard work of the #MEAction community we have sent postcards to nearly 6,000 clinicians across the United States. We could not have done this without the invaluable contributions from the artists who designed our postcards ...

Degrees of Distance

Many of us (housebound/bedbound) worry about dear ones who are sick, infirm, or struggling, esp. if we live afar. We feel not being there when we need to be, want to be, no matter what the circumstances, as failed fidelity, incurring a debt of love ...