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Category Archives: Community

Degrees of Distance

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Many of us (housebound/bedbound) worry about dear ones who are sick, infirm, or struggling, esp. if we live afar. We feel not being there when we need to be, want to be, no matter what the circumstances, as failed fidelity, incurring a debt of love ...

Join #MEAction’s Board of Directors

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#MEAction is building a global movement to fight for recognition, education and research so that one day, all people with ME will have access to compassionate, effective care. We are currently seeking patients, caregivers, and allies with one or more of the following experiences to join our Board of Directors: Have ...

Are you Disabled? How does ME fit into the Disabled People’s Movement?

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Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of ...

Volunteer of the Month: An Ally of Many Talents

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Malcolm Bailey from the UK has bailed us out with his tech savvy skills on more than one occasion. We are so lucky to be able to rely on his dependable help for projects both small and large. As he describes it, " As a healthy ally I've done everything from ...

Why We Must Build Coalitions to Strengthen our Movement

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Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of ...

Inside / Outside Activism: Why We Must Shout in the Streets and Sit at the Table.

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Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of ...

Why Civil Disagreement and Respect are Essential to the ME Movement

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VALUES & POLICY INITIATIVE Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of ...

Words from the Depths of Severe ME: Honoring the life of Rosie

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Photo is of Rosie with her niece 10 years ago.  Today we honor the life of Rosie Bayman who died from severe myalgic encephalomyelitis (ME) one year ago, today.* Rosie, from Warwickshire, England, had ME for five years before she died. Rosie wrote poetry in her head when she had to lie in ...

Why We Must Build an Open, Grassroots Movement

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Listen to the article:  Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate ...

Join Our Values and Policy Initiative

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Listen to the article:   On behalf of #MEAction International’s board, staff, volunteers and everyone who form a part of our wider community, I want to welcome and invite you to participate in what we are calling “Values and Policy,” an ambitious, six-month initiative to learn, engage, debate and ultimately devise the ...