Covid-19 Resources for People with ME

×

Category Archives: Community

Medical Education Event London #MEActionUK

Invite your Doctor to learn about ME – Medical Education Event in London

March 11 Update: After thoughtful deliberation, we have made the difficult but necessary decision to postpone our Medical Education event in London, originally due to take place on April 1 at the LSHTM. We know how much this means to the community, and we did not make this decision in ...

Postcards to Doctors Featured Artist: Emily Lawton

We are so excited that the Postcards to Doctors Initiative sent more than 6,000 postcards to physicians across the United States! We’d like to take this opportunity to recognize one of #MEAction’s Postcards to Doctors amazing artists, Emily Lawton. After she was diagnosed with ME at the age of fifteen, ...
Take ME Seriously

Another No from NICE – Take ME Seriously

As publication of new ME guidelines are delayed, NICE once again refuse to take action to mitigate the harmful recommendations that still stand in the existing guideline. Join us as we send them a giant card and tweet them so that they see the damage their guidelines have caused. Read ...

#MEAction State Chapters are Trailblazing Change for ME across the United States

As we enter into 2020, we want to take a moment to recognize all the hard work our State Chapters accomplished in 2019 for myalgic encephalomyelitis (ME). The tenacity and commitment of our state leaders and members is awe-inspiring. #MEAction Colorado introduced a resolution for ME before the Rotary Club ...

We Celebrate the Life and Legacy of a Warrior for ME

It is with heavy hearts that we share the passing of ME community advocate, Cindy Siegel Shepler. Cindy lived with myalgic encephalomyelitis (ME) and multiple other health issues. She dedicated much of her increasingly limited time and energy to advocacy, increased awareness, and increasing research funds for ME. She had ...

Cards for Koroshetz: Send a Holiday Card to NIH Demanding Action!

This holiday season, the #MEAction community plans to flood the mailbox of the U.S. National Institutes of Health (NIH) with holiday cards calling for NIH NINDS Director, Dr. Walter Koroshetz, to take immediate ACTIONS to end the crisis of myalgic encephalomyelitis (ME). We need your help! Take action with us: ...

Your #MEAction guide to the holidays: with Pinboards!

The holidays are a stressful time. Between gift-giving (and buying), travel, cooking, decorating, and guests in the home – not to mention winter colds, increased heating bills, and challenges in local travel like snow and icy roads – it’s no wonder that many people emerge from the hazy shade of ...

#MEAction’s Guide to Weathering the Holidays

Note: if you prefer to download this list as a pdf you can download it by clicking here. Make a list of whatever you can do in advance and a schedule for completing your tasks with plenty of wiggle-room.The holidays are often jam-packed with tasks. Sit down nowish and make ...

WHY WE CARE: Directly Supporting People with ME

Erica Verrillo is founder of The American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society (AMMES), which provides direct assistance (rent, clothing, food, etc.) to people with ME who are in crisis in the U.S., as well as resources to the ME community. A generous donor has offered a matching donation ...

Host a Postcards to Doctors party this holiday season!

Host a Postcards to Doctors party this holiday season! And announcing: #MEAction's first Pinterest boards! Together, the #MEAction community has made the Postcards to Doctors initiative an incredible success: there have been approximately 5,500 requests for postcards to doctors across 43 states! We are so thankful to see people across ...