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Category Archives: Awareness

Are you Disabled? How does ME fit into the Disabled People’s Movement?

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Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of ...

Why We Must Build Coalitions to Strengthen our Movement

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Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of ...

ME Activist Testifies before EU Parliament

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Today Evelien Van Den Brink spoke powerfully and brilliantly to the Committee on Petitions in the European Parliament from her stretcher. Evelien laid out both an emotional and scientific appeal for biomedical funds for ME. She ended her appeal by saying “On behalf of all patients, I am asking you, please ...

Colorado Activist Introduces Rotary Club Resolution for ME

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Colorado activist, Jim Lutey, has introduced a Rotary Club resolution to encourage research, education and funding for myalgic encephalomyelitis (ME!) The resolution’s purpose is to “leverage Rotary’s worldwide reputation and expertise on polio eradication to raise awareness on the need to educate the public and medical practitioners on the importance of ...

Postcards to Doctors returns!

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Great news!  Postcards to Doctors has relaunched as of today, October 1!  You can now request new postcards and addresses here.  If you requested postcards or addresses during the month of September, we've resumed generating addresses and sending postcards as of today, and you should receive yours within the next ...

Words from the Depths of Severe ME: Honoring the life of Rosie

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Photo is of Rosie with her niece 10 years ago.  Today we honor the life of Rosie Bayman who died from severe myalgic encephalomyelitis (ME) one year ago, today.* Rosie, from Warwickshire, England, had ME for five years before she died. Rosie wrote poetry in her head when she had to lie in ...

California Activists Fight for Centers of Excellence for ME

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California advocates for myalgic encephalomyelitis (ME) are fighting for the state to institute a statewide Centers of Excellence program that would train ME specialists, provide state-of-the-art treatment for people with ME, and undertake advanced research. Activists across the state have already met with 24 state legislators to discuss this initiative. Activist ...

#MEAction Welcomes our Social Media Ambassador from South Africa

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We are excited to announce our newest Social Media Ambassador, Clarinda Viviers, from South Africa! A social media ambassador is a volunteer who is knowledgeable, an enthusiastic supporter of the ME community and #MEAction, and has a strong social media presence. Each ambassador amplifies #MEAction’s social media efforts and share ...

Greater London Authority Unrest screenings to raise awareness of ME

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The Greater London Authority’s offices have held two Unrest screenings over the past few months to raise awareness of myalgic encephalomyelitis (ME). The screenings, held for staff, took place at Union Street and City Hall, and were part of ME Awareness Week and the #MillionsMissing campaign. Officers and staffers attended the ...
Individuals who were lied to and misrepresented by Netflix’s Afflicted include (left to right): Jake, Pilar, Jamison, Jake & Bekah, Jill & Janine

Netflix’s “Afflicted” Cast Sues for Defamation

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Four cast members of the Netflix series, Afflicted, have filed a lawsuit against Netflix and Doc Shop producers for defamation for portraying them as 'hypochondriacs and/or malingerers." The lawsuit indicates that the Doc Shop producers lied to the Afflicted participants “because the series was not a documentary in any sense of ...