Category: Severe ME

Voices from Sacramento: Janet Dafoe and Ashley Haugen

Some of you may know Dr. Janet Dafoe and her daughter Ashley Haugen through their tireless advocacy work for ME.  Dr. Dafoe’s son and Ashley’s brother, Whitney Dafoe, has severe ME, and is the impetus behind their efforts to raise funding, raise awareness, and raise hell. These statements were read at the Sacramento California rally on June 2, 2017.

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The UK ME/CFS biobank paves the way for bigger and better research

On ME Awareness day this year, 12th May, the London School of Hygiene and Tropical Medicine (LSHTM) opened the UK ME/CFS Biobank for business, with blood samples available from 300 patients now, and there will soon be samples for over 200 controls. The ready availability of samples for large numbers of well-characterised patients and controls

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Take Action on Severe ME Day

Today, August 8th, is Severe ME day.  Today is a day of remembrance, when we think of those whom we have lost to ME.  Severe ME Day is August 8th because that was Sophia Mirza‘s birthday.  Her death in 2003 was one of the first in which cause of death was listed as myalgic encephalomyelitis.

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Send Dr. Ron Davis a 75th birthday message!

The Open Medicine Foundation (OMF) is inviting patients and supporters to send Dr. Ron Davis a message for his birthday and a donation to support his End ME/CFS Project. The OMF said that the messages would be compiled into a “massive card” that would be presented to him. Dr. Davis, of Stanford University, will be

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Ron Davis: Preliminary data shows problems with energy metabolism

Professor Ron Davis presented new findings from his Big Data study at Friday’s Invest in ME 2016 conference. Davis’s preliminary data show serious problems with the biochemical processes needed to convert sugars and fats from food into energy the body can use. If these findings are replicated, this could prove a major step forward in

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Davis at Invest in ME: New Severe Patients Data

Invest in ME’s 2016 international research conference in London ended on Friday with a talk by Professor Ron Davis on his “Severely Ill, Big Data” project that was described by patients as “mind-blowing” and “really exciting”. His talk was the culmination of three days of research presentations by leading names in biomedical ME/CFS research including

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Jason study compares housebound and non-housebound patients

A new study was published recently in the journal Chronic Illness, entitled Housebound versus nonhousebound patients with myalgic encephalomyelitis and chronic fatigue syndrome by Pendergrast et al.  The authors of the paper included the well-known ME/CFS researchers Julia L. Newton and Leonard Jason.  Newton is most often recognized for her studies in muscular function in

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