Scotland Archives

Goodbye to graded exercise therapy but concerns about physical activity programmes – Community Discussion

November 30, 2020 No Comments

There were significant concerns about the recommendation of a physical activity programme in the draft ME/CFS guideline, even with the caveats attached. The recommendation that a physical activity programme should be considered if patients would ‘like’ to start one, was felt to imply that there is a choice or a desire involved, rather than increased physical activity being impossible for many.

twenty photos of people attending the call are on screen

“Loopholes need closing” – ME/CFS draft guideline community discussion

November 18, 2020 No Comments

At our first community call on the draft ME/CFS guideline from NICE, training in all areas of the guideline was seen as key if it is to have an impact on the health and social care professionals implementing these recommendations.

Long COVID Patients Warned of Damaging Exercise Programme

November 3, 2020 2 Comments

#MEAction UK is highlighting the links between “Long Covid” and ME in the press. In particular, we want people at risk to know about the danger of exercise if they have post-exertional malaise.

Meet the Volunteers: Denise and Mal

November 3, 2020 No Comments

We are winning the awareness battle – there is a way to go yet, but society is taking ME more seriously now than even 4 or 5 years ago.

Meet the Volunteers: Karima and Pam

October 30, 2020 No Comments

It was brilliant to find people who not only understood life with ME but were fighting to make it better. I soon realised there was a lot of work happening all year round, far beyond #MillionsMissing, and I’ve been helping where I can ever since.

Meet the Volunteers: Janet and Helen

October 28, 2020 No Comments

“The Scottish Government has responded to our petition with a range of actions; if these are seen through, I am hopeful of change in Scotland.”

Meet the Volunteers: Hayley and Susan

October 23, 2020 No Comments

I want to raise awareness and educate as many people as possible. There is a real lack of understanding for ME generally as well as within the medical world.

6 ways to have your say in the NICE ME/CFS guideline consultation

October 22, 2020 No Comments

You can steer #MEAction UK’s response to the draft ME/CFS guideline consultation. Join a community call, respond to our social media polls, volunteer to read the evidence reviews and more!

Psychology Today fails in its duty of care to people with ME

October 2, 2020 9 Comments

#MEAction UK has written to the online publication Psychology Today asking for the retraction of a stigmatising blog post.

#MEAction Scotland Petition: Achievements and Agenda-setting

September 30, 2020 No Comments

#MEAction Scotland submitted their petition to the Scottish Parliament in May 2018. In June, Emma Shorter, #MEAction Scotland’s volunteer leading the petition, made a powerful speech to the Petitions Committee describing the desperate need for support for people with ME in Scotland.

Category: Scotland