Respond to the Patient Safety Commissioner role consultation
May 18, 2021
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Scottish Action Alert! Use your voice to make a difference and respond to this goverment consultation.
Category: Scotland
Continuing pressure on NHS to vaccinate people with ME in light of survey results
May 5, 2021
1 Comment
In light of this new evidence of exacerbation of ME from Covid-19, #MEAction UK have again written to Matt Hancock and Professor Stephen Powis to make them aware of the risk to people with ME in not being able to access the Covid-19 vaccine as a priority.
Covid-19 has worsened our ME, report survey respondents
April 29, 2021
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Read the first findings from the survey #MEAction UK and #MEAction Scotland are conducting with Action for ME to gather evidence of the impact of Covid-19 on people with ME. Preliminary Report The aim of the survey is to provide data that can be used, along with personal stories, to help our campaign to make
UK ME/CFS Priority Setting Partnership launches first survey
April 19, 2021
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This is an exciting opportunity to set research priorities for ME, and could be the next big step towards improvinging research funding in the UK.
Graded exercise therapy is not safe for ME or Long Covid – Guardian Letters
March 15, 2021
1 Comment
In response to an article on Long Covid last week, the Guardian published a letter from three men – Dr Alistair Miller, Professor Paul Garner and Professor Peter White. This letter spread false information about the efficacy and safety of graded exercise therapy for ME and Long Covid. We are pleased to see that The
Waiting for Superman – UK Book Giveaway and Review
March 2, 2021
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Do you want to win a free copy of Waiting for Superman? We have three copies to give away to people in the UK! To enter, all you have to do is follow #MEAction UK on Instagram, like and comment on this post. The deadline is 9am (GMT) Monday 8th March! Win a copy! Thank
Scottish Election! Ask your MSPs to support people with ME
February 25, 2021
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If you live in Scotland, please join our campaign to ask your MSPs to pledge their support for people with ME. Email your MSPs The Holyrood elections are coming up on 6 May 2021 and we want to make sure that MSPs are aware of ME and the desperate need for support. There are more
UK COVID-19 Vaccine Priority and Template Letters
February 12, 2021
1 Comment
The JCVI make it clear that the vaccine priority list is not exhaustive and clinical judgement should be applied for people with ME.
Latest report shows people with ME have been failed by Scottish Government
February 5, 2021
1 Comment
The Scottish Government has said it must not wait to address the needs of the ME community, but its latest report indicates that this is precisely what it has done and continues to do.
UK government should add ME to vaccine priority list
February 2, 2021
10 Comments
#MEAction has written to the Chief Medical Officer and the Joint Committee on Vaccination and Immunisation to call for ME to be included on the vaccination priority list.