This article by Ola Didrik Saugstad was originally published 14 July 2015, at. 8:00 in leading Norwegian newspaper Dagbladet.no. Excerpts from the online English translation below. Undocumented treatments have led to some of the worst disasters in the history of medicine. Many ME patients feel today that the public health system is exacerbating their condition.
Open Medicine Foundation (OMF) End ME/CFS Project This is a game-changing initiative to find a cure for ME/CFS, a devastating and life-altering disease that affects more than 2.5 million people in the U.S. alone — Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. This is the first time ever that leading world-class scientists will be putting their minds together
Palo Alto Online recently published a series of three articles highlighting the struggles faced by Mylagic Encephalomyelitis (Chronic Fatigue Syndrome) patients and their caregivers. The series centers around Whitney Dafoe and his father’s research work. All three articles are excerpted and briefly summarized below. Chronic fatigue syndrome saps its victims, but new research may find
Tune in to the LIVE webcast on July 1st, 1:00PM EST and watch Dr Ian Lipkin and Dr Mady Hornig take the #ChilliMEchallenge!
We have our next update on END ME/CFS’s Big Data study of severely ill patients and the sum raised so far is an amazing $103,840, from 235 donations.
The National Institutes of Health have released the results of their 1.5 day workshop on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. The full P2P workshop abstract is available online but some of the most interesting and important points are excerpted below. Leave a comment and tell us, what do you like about the report? What don’t you
Excerpted from Science and Popular Science A new test called VirScan would allow a patient to be tested for hundreds of viral infections at the same time. “To see if a patient has ever been infected by a particular virus, researchers expose antibodies in the patient’s blood to molecules with the virus’ molecular signature. In
Episode 3 of my 28 European Marathon challenge takes me to Finland! I’m running a marathon in every country in the European Union to help raise awareness and funds for biomedical research into ME.
The NIH Pathways to Prevention workshop panel will hold a press telebriefing to discuss their findings and answer questions from members of the media.
28 Marathons for Myalgic Encephalomyelitis Awareness and Research I’ll be running a marathon in each of the 28 EU member countries to raise awareness and much needed funds for biomedical research into ME & for the charity Invest In ME I’m aiming to raise funds and awareness for biomedical ME research across the 28 countries
