Category: Research

The NIH talks ME/CFS: The P2P Workshop Report

The National Institutes of Health have released the results of their 1.5 day workshop on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. The full P2P workshop abstract is available online but some of the most interesting and important points are excerpted below. Leave a comment and tell us, what do you like about the report? What don’t you

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Virscan: 1 Test for every virus that has ever infected you

Excerpted from Science and Popular Science A new test called VirScan would allow a patient to be tested for hundreds of viral infections at the same time. “To see if a patient has ever been infected by a particular virus, researchers expose antibodies in the patient’s blood to molecules with the virus’ molecular signature. In

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Lymphatic vessels in the brain: Gamechanger for Neuroimmune diseases?

It’s rare that new research means rewriting textbooks. But new information discovered by University of Virginia School of Medicine researchers might do just that for neuroscience, immunology, and even anatomy. This discovery also has definite implications for the diagnosis and treatment of neuroimmune conditions like Myalgic Encephalomyelitis (Chronic Fatigue Syndrome). Excerpted from multiple sources. “The relationship

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Takeaways from The ME Association's CBT, GET, and Pacing Report

ME/CFS Illness Management Survey Results “No Decisions about me without me” The ME Association just released the results of a patient survey taken in 2012 that covered management and self-management courses commonly offered to patients with Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, or Post-viral Fatigue Syndrome. The report (available in full on the ME Association website)

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Q&A with the OMF Severely Ill Big Data Study

The Open Medicine Foundation’s big data study on severely ill patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is an exciting new project designed to uncover biomarkers by studying the sickest of the sick. Want to learn more? Your pressing questions about the study are answered below.   How long will it take to do the study?

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