Leonard Jason and the DePaul Research team’s #ChilliMEchallenge supporting #MEAction Thank you to the entire team at DePaul’s Center for Community Research for your incredible work for ME/CFS patients around the world. And thank you for choosing #MEAction for your donation. The #MEAction team is so grateful for your support! Check out the DePaul #ChilliMEChallenge
A new Danish study shows that ME patients have among the greatest levels of disability when compared to other common diseases: [pullquote align=”full” cite=”” link=”” color=”#E7453A” class=”” size=””]ME/CFS has the lowest health-related quality of life score when compared to cancer, diabetes, lupus, stroke, heart disease and chronic renal failure.[/pullquote] The study surveyed 105 patients. 27% of ME
ME/CFS is an extremely complex disease that is poorly understood by medical science. To date, much of the research has been conducted on a small scale, targeting single aspects of the disease. Ambitious and groundbreaking, the Solve ME/CFS Initiative’s DEFEAT ME/CFS is a comprehensive plan aimed at mastering the complexity of ME/CFS to render meaningful results, bringing us closer to a cure.
Using a new technology that allows the sampling of living T-cells in real time, researchers at Stanford University have found that men and women turn on and off immune system genes differently. This may help explain the much higher incidence of autoimmune diseases like scleroderma, lupus, and multiple sclerosis among women. It may also help explain why
The US NIH requests public comments on their strategic plan The United States National Institutes of Health wants feedback from you on their proposed strategic plan for the next 5 years. Jennie Spotila at Occupy CFS explains why this is important: One of the major weakness of the plan is that it leaves all the
Excerpts from Llewellyn King’s article Virus Hunters Turn to Social Media — and Chili Peppers posted on Huffington Post, The Blog at 07/15/2015 3:33 pm EDT Why were two of the world’s most eminent scientific researchers sitting down to munch their way through a plate of chili peppers, flavored with Tabasco sauce, setting their mouths
This article by Ola Didrik Saugstad was originally published 14 July 2015, at. 8:00 in leading Norwegian newspaper Dagbladet.no. Excerpts from the online English translation below. Undocumented treatments have led to some of the worst disasters in the history of medicine. Many ME patients feel today that the public health system is exacerbating their condition.
Open Medicine Foundation (OMF) End ME/CFS Project This is a game-changing initiative to find a cure for ME/CFS, a devastating and life-altering disease that affects more than 2.5 million people in the U.S. alone — Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. This is the first time ever that leading world-class scientists will be putting their minds together
Palo Alto Online recently published a series of three articles highlighting the struggles faced by Mylagic Encephalomyelitis (Chronic Fatigue Syndrome) patients and their caregivers. The series centers around Whitney Dafoe and his father’s research work. All three articles are excerpted and briefly summarized below. Chronic fatigue syndrome saps its victims, but new research may find