After the March 8th telebriefing with the NIH, many advocates in the ME community still came away with questions. Billie Moore, NJME/CFSA Advocacy Chair, and member of the USAWGaAnd CDC’s TDW Workgroup, was one of them. Though representatives of the NIH spoke at great length about the big picture of the new ME/CFS efforts that the organization is …
Professor James Coyne’s February 9 Belfast talk, “The Scandal of the £5m PACE Trial”, is now available on YouTube. The talk, given at Stormont, the home of the Northern Ireland Assembly, was delivered to a 40-strong audience of Members of the Legislative Assembly (MLAs), doctors, researchers and key health decision-makers. Professor Coyne spoke about how …
let’s get the word out august 8!!
The Chronic Fatigue Syndrome Advisory Committee (CFSAC) will hold a public meeting on Tuesday, August 18, 2015, from 9:00 a.m. until 5:00 p.m., ET and Wednesday, August 19, 2015, from 9:00 a.m. until 5:00 p.m., ET. Public comment may be provided in person, by telephone, or in written form.
Tune in to the LIVE webcast on July 1st, 1:00PM EST and watch Dr Ian Lipkin and Dr Mady Hornig take the #ChilliMEchallenge!
Online art and health exhibition featuring extracts from “The State of ME” As part of London Creativity and Wellbeing week 4-12 June, The Well Made Project is hosting an online exhibition called A Series of Unexpected Events. ‘Over the course of a week, this online exhibition on art and health will publish an artwork by …
Episode 3 of my 28 European Marathon challenge takes me to Finland! I’m running a marathon in every country in the European Union to help raise awareness and funds for biomedical research into ME.
The NIH Pathways to Prevention workshop panel will hold a press telebriefing to discuss their findings and answer questions from members of the media.
Groups of chronically disabled patients, victims of medical abuse, will be assembling for a peaceful but passionate protest on the steps of USDOJ, 950 Pennsylvania Avenue NW, Washington, DC 20530, from June 1 until July 4.
My brother has made a video to promote his participation in the Edinburgh marathon (31st May) in aid of ME Research UK. Although partly a fundraising initiative, the video also delivers a powerful message and can be used as a tool for raising awareness. It has been viewed over 4,000 times in one week, and so far raised roughly the same amount in £. Please share as widely as possible. https://www.youtube.com/watch?v=dgovI7Q273g (or go to YouTube and search for ‘ME awareness – Tom’s appeal”