John Oliver, please talk about ME/CFS Funding! Please sign up/login to HBO’s “Last Week with John Oliver” page to “like” and comment on the topic idea of funding for ME/CFS: Ask John Oliver to talk about ME/CFS Funding! For those of you not familiar with “Last Week Tonight with John Oliver” – it has become
Write “M.E.” on your left hand or forearm (if you do not want to use marker on your skin, you can improvise with a piece of paper as many have done). Cover your mouth with your hand and make sure to look into your camera lens. Upload to Twitter or Instagram with the hashtags: #sufferingthesilence #MEAction and #severeme. If you are on Facebook, you will need to post to The #MEAction Network page AND use the hashtags above.
Saturday, August 8th is Severe ME Day. It is a day of awareness raising for those suffering severe myalgic encephalomyelitis as well as a day of remembrance. August 8th was the birthday of Sophia Mirza, a 32 year-old woman who died of ME. Here are three ways you can observe the day: 1) Join the Twitter
let’s get the word out august 8!!
Please vote DAILY to help the National ME/FM Action Network win $2,000 in research money in the Karma Wellness Water contest!
Little bags of happiness for chronic illness sufferers!
As part of the #chilliMEchallenge we are encouraging people to tell us their #myMEstory and create awareness by putting a voice and a face to this illness.
Tune in to the LIVE webcast on July 1st, 1:00PM EST and watch Dr Ian Lipkin and Dr Mady Hornig take the #ChilliMEchallenge!
Every Wednesday #MEawarenesshour is a set time to tweet and share stories about the illness, personal experiences, research, funding events, charities, artwork and poems on the subject, general awareness and hopefully put right a few misconceptions.
The NIH Pathways to Prevention workshop panel will hold a press telebriefing to discuss their findings and answer questions from members of the media.
