Visionary viral disease treatment needs funding
October 15, 2015
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Imagine a drug that could treat almost any viral disease. We may only be a few years’ away, thanks to Dr Rider at MIT.
Category: Featured news
UK CMRC conference on October 13 and 14
October 11, 2015
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UK CMRC conference to be livestreamed on 13 and 14 October Parts of this year’s UK CFS/ME Research Collaborative (CMRC) international conference, which will be held in Newcastle on Tuesday the 13th and Wednesday the 14th of October, will be livestreamed by the charity Action for ME. The conference has a full two-day agenda of
Push to change ME/CFS NICE guideline
October 10, 2015
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Minutes just released for the 15 July 2015 meeting of the cross-charity Forward-ME group record a discussion with Dr Martin McShane of NHS England on getting him to recommend that the NICE guideline on ME/CFS should be revised. The guideline, which should be based on the best available scientific evidence, and which is followed by
The Atlantic publishes a nuanced push for public funding
October 9, 2015
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The Tragic Neglect of Chronic Fatigue Syndrome With a surprisingly broad-ranging and detail-rich article by Olga Khazan entitled “The Tragic Neglect of Chronic Fatigue Syndrome,” The Atlantic became the latest national publication to inform its readers about the severity of disease impact, dearth of medical understanding and treatment, lack of public awareness, and abysmally low
Autoantibodies found in subset of CFS patients
September 26, 2015
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A new German study published in Brain, Behavior, and Immunity by Loebel, et al. has found that Chronic Fatigue Syndrome* may be an infection-triggered autoimmune disease, at least in a subset of patients studied. Samples from a large cohort (n=268) in Berlin and a smaller sample of patients treated with Rituximab (n=25) were measured against controls (n=168).
Treadmill test shows who Ampligen may help
September 24, 2015
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Hemispherx Biopharma research shows that CFS patients who can perform more than 9 minutes on a treadmill are more likely to benefit from Ampligen.
Chronic Fatigue Syndrome Advisory Committee (USA) recommendations
September 21, 2015
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USA’s CFS Advisory Committee wants bigger research, aimed at finding diagnostic tests, using Canadian Consensus Criteria and private-public partnerships to find drug treatments. It asks for $250 million annually, estimating ME/CFS costs the US up to $24 billion.
Study shows immune differences in moderate and severe CFS/ME
September 17, 2015
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New Australian study shows immune difference in moderate and severe patients. It may lead to a test based on these markers.
Julie Rehmeyer on Science and ME/CFS
September 12, 2015
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Julie Rehmeyer on Science and ME/CFS Julie Rehmeyer, an award-winning science and math writer, was recently interviewed about how her experience with ME/CFS has affected her perspective on science. The insightful piece ranges from a discussion of how the CDC’s treatment of ME/CFS has lessened her trust of institutions of science to how her experiences have
MedPage Today: ME/CFS is Gaining Attention
September 12, 2015
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MedPage Today Focuses on Need for Recognition of ME/CFS and Research Funding MedPage Today, a news site for medical workers, published an article about ME/CFS that mentions the #MEAction campaign to increase federal research funding. The article gathered quotes from top ME/CFS researchers Leonard Jason and Lucinda Bateman, and it summarized the findings of the recent