Category: Featured actions

Contact your CONGRESSIONAL REPRESENTATIVES now!

***UPDATE: THIS ACTION IS NOW OVER***   Please contact your MEMBERS OF CONGRESS IMMEDIATELY and urge them to sign a bicameral letter to the Department of Health and Human Services (HHS). The joint letter – from both the House and the Senate! – (1) states that more must be done by HHS to address ME/CFS

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NICE Appoints Committee Rife with Bias – Take Action!

What’s been happening at NICE? The National Institute of Clinical Excellence (NICE) is re-writing its guidelines on ME/CFS. Health professionals in the UK base their care of people with ME on these guidelines, and they are influential globally. Since their inception, patients and their families have found the current guidelines detrimental to care. Last week,

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Mobilize your Medical Providers to Watch Unrest for Credit

PLEASE NOTE: The Unrest CME has now expired. However, you can still recommend the film to your provider and access the associated materials. The film is available on Netflix and can be found here. We are so thrilled to announce that US healthcare providers – including doctors, nurses, physician assistants, therapists and social workers – can now

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Per Fink is coming to US this week! Here's 3 actions you can take

The Danish physician, Per Fink, is traveling to the United States to speak about his unscientific and dangerous idea that myalgic encephalomyelitis (ME) is a psychosomatic illness. Per Fink has been invited to speak at a psychosomatic conference at Columbia University in New York City on Saturday, Oct. 20th. Columbia University will reward medical providers who come to hear Per Fink speak with Continuing Education

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Stop Per Fink from Spreading Misinformation about ME: Sign the Petition

The Danish physician, Per Fink, is traveling to the United States to speak about his unscientific and dangerous idea that myalgic encephalomyelitis (ME) is a psychosomatic illness. Per Fink has been invited to speak at a psychosomatic conference at Columbia University in New York City on Oct. 20th. Columbia University will reward medical providers who come to hear Per Fink speak with continuing education credits.

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Open Letter Demands Removal of Netflix's "Afflicted" – Sign the Petition

On September 18th, more than 40 writers, activists, artists, filmmakers, physicians, and scientists came together to write an open letter to Netflix to request that Afflicted be immediately removed from the service. “We are deeply concerned about its unethical treatment of its subjects and its many factual errors and omissions,” states the letter. “Its inclusion

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How To Protest HHS with #MEAction

We will protest the U.S. Department of Health and Human Service virtually, on social media, on Friday, Sept. 14th. We have canceled the in-person protest in Washington, D.C. due to the fact that a hurricane is headed for that area on Thursday. We will reschedule the Washington, D.C. protest for a later date. Our virtual protest on Friday,

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