Category: Featured actions

Help us get ME in the 21st Century Cures Act

#MEAction recently launched as an online platform to help anyone become an advocate. Now we are announcing our own advocacy action: A quick-strike lobbying campaign this August to spur the US Congress to vastly increase research funding for ME/CFS at the National Institutes of Health. We launched this effort to capitalize on the 21st Century

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Suffering the Silence Campaign for M.E.

Write “M.E.” on your left hand or forearm (if you do not want to use marker on your skin, you can improvise with a piece of paper as many have done). Cover your mouth with your hand and make sure to look into your camera lens. Upload to Twitter or Instagram with the hashtags: #sufferingthesilence #MEAction and #severeme. If you are on Facebook, you will need to post to The #MEAction Network page AND use the hashtags above.

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Take the funding equality petition to the streets

The US funding equality petition has over 4,000 signatures. We still have a lot of work to do to get to our goal of 50,000 signatures nationwide. As we learned from the Dutch campaign, the only way to get to get large numbers is to take the petition into the streets.   Help us increase signatures for

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U.S. Funding petition: help us target key states

  Is your senator a member of the Health, Education, Labor and Pensions (HELP) Committee? Do you have friends or family living in the following states?   SIGN AND SHARE YOUR STATE PETITION   ALASKA * COLORADO * CONNECTICUT * GEORGIA * ILLINOIS * KANSAS * KENTUCKY * MAINE * MARYLAND * MASSACHUSETTS * MINNESOTA

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Take The Chilli M.E. Challenge

Take The Chilli M.E. Challenge. The Chilli M.E. Challenge is an advocacy initiative started by four girls who met on Facebook and decided that something had to be done to spread awareness to those that don’t have ME and also to raise much needed funds for biomedical research for Myalgic encephalomyelitis (ME)/ Chronic Fatigue Syndrome

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Crowd funding for The OMF ME/CFS Severely Ill Big Data Study

As part of our OMF End ME/CFS Project, this study will conduct a comprehensive, “Big Data,” analysis on severely ill ME/CFS patients with the goal of finding sensitive  and distinctive molecular biomarker(s). Very little research has been done in the bedbound. severely ill patients because they are hard to reach. By looking at the simple

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The $10 Challenge For Columbia CII ME/CFS Research

The Microbe Discovery Project began as a patient-driven crowdfund to raise funds for world-class researchers Dr Ian Lipkin and Dr Mady Hornig at Columbia University’s Center for Infection and Immunity (CII), New York. Research into ME/Chronic Fatigue Syndrome is sorely needed and there is a paucity of research into the illness. Patients raised a whopping

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