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Category Archives: New York

#MEAction U.S. State Chapters have a BIG Vision for ME! Find Out What is Happening in Your State.

#MEAction is fighting to end the crisis of myalgic encephalomyelitis (ME) and create an equitable world for people with ME. We know that we must fight at every level to make this happen. #MEAction U.S. State Chapters are dug in and working to change the landscape of ME in their ...

Enrolling: Stony Brook University ANS Study

Who:  Researchers at Stony Brook University-- funded by the National Institue of Health What: The goal of this study is to use data obtained from participants to compare the relationships between fatigue, physical activities and autonomic function (heart rate variability). Individuals with ME/CFS as well as healthy controls are needed. Those ...

Celebrating the 2018 Successes of Our U.S. State and Local Advocacy Groups

As the year comes to a close and we look over all that we have accomplished, we know that we could not have done this without the amazing work of our #MEAction U.S. state and local advocacy groups. These groups are the foundation of our work as they build support, ...

Join the fight against stigma and pseudoscience in New York

This weekend, the New York State Psychiatric Institute is hosting a conference on psychosomatic illness at Columbia University Medical Center -- and they invited Per Fink to speak.  If you have watched Unrest, you know that Fink’s clinic was responsible for the involuntary institutionalization of Karina Hansen, a Danish young ...

Enrolling: Cornell Brain Imaging

Cornell Center for Enervating Neuroimmune Disease aims to collect brain images (MRSs) from individuals with ME to study oxidative stress and neuroinflammation. Dr. Dikoma Shungu hopes to identify possible biomarkers for ME as well as add to the overall understanding of the disease. Who: Cornell Center for Enervating Neuroimmune Disease is collecting ...

Enrolling: Cornell Exercise Testing Study

Who: Cornell Center for Enervating Neuroimmune Disease What: The Center is collecting information from both ME patients and sedentary controls. You will first have a quick phone call to determine eligibility. If eligible, you will meet with a doctor (theirs or yours) to be examined or for blood and urine tests. Then you ...