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Category Archives: Congress

U.S. Congress Introduces Resolution for ME

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Yesterday, the U.S. Congress introduced a resolution in the Senate to show support for research and medical education for Myalgic Encephalomyelitis (ME) ...

Ten Percent of U.S. House Representatives Show Support for ME

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Yes, you read right!  Thanks to the incredible community outreach over the course of just a few days, TEN percent of the House of Representatives signed a letter to the chairs of the House Appropriations Committee advocating for ME/CFS. Forty-four members from twenty states and the District of Columbia signed ...

Urgent Congressional Action! Ask your Rep. to Sign Letter for ME/CFS

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URGENT Congressional Action! Please take this opportunity to call and email your House representative today to request they sign a letter that inserts favorable language about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) into the House Appropriations Committee report for the FY19 budget. The deadline for your representative to sign the ...

Invite Congress to experience UNREST film and VR!

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#MEAction is teaming up with the Time for Unrest campaign and Solve ME/CFS Initiative to bring two new exciting opportunities to educate people on Capitol Hill about ME next week. On Wednesday, September 13, there will be a screening of the the Sundance award winning film, Unrest, directed by and ...

Tell Congress “Don’t defund ME/CFS!”

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Last week, the House Appropriations Subcommittee on Labor-HHS zeroed out the $5.4 million line item for Chronic Fatigue Syndrome at the CDC....again. Tell your members of congress to restore the funding for ME/CFS for next year’s budget. We cannot abandon the progress we've made so far! ...

Thank Senator Markey for Sponsoring the Congressional ME Briefing

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Back in February 2017, Senator Ed Markey (D-MA)  publicly announced at a packed town hall meeting that he would advocate for ME. A few short months later, he did just that! His first act as an ME advocate was to sponsor a Congressional Briefing on Capitol Hill on May 18th ...

Congress is home & hosting public meetings

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U.S. House and Senate members are home in their districts for the month of February. Many will be holding public town hall meetings, tele-town meetings (via phone) or events this month. It’s a great opportunity to speak directly to your congressperson at a public gathering about the urgent need of congressional ...

21st Century Cures Act Passes House with Overwhelming Bipartisan Support

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21st Century Cures Act Passes House with Overwhelming Bipartisan Support ME/CFS advocates have been eagerly awaiting passage of the 21st Century Cures Act since it was initially introduced in 2013, given it was originally written to increase NIH funding and fast-track research and treatment development. On Wednesday, November 30, a ...