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Category Archives: UK Parliament

Proud Accessible Activism: The ME Debate Virtual Demonstration

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Throughout history, activism and campaigning have been a driving force for positive change across the world. From civil rights to LGBTQ rights and more. However much of this has been inaccessible to large swathes of the disability community. For the ME community - the #MillionsMissing -  the nature of this illness ...

Historic Parliamentary Debate Shaped by People with ME

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Listen to the article:  On Thursday 24th January 2019 a historic debate took place. Over 40 MPs from across the political divide sat in the House of Commons to debate a motion on myalgic encephalomyelitis (ME), with 27 making impassioned contributions on behalf of their constituents. Together they unanimously passed this motion: “That ...

Join the virtual demonstration in support of the ME debate!

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Listen to this article on #MEAction’s Soundcloud here On Thursday afternoon, 24th January, MPs from all parties will be debating a motion put forward by Carol Monaghan MP in the House of Commons. The motion covers biomedical research funding, the suspension of GET and CBT, updated training for medical professionals and ...

What can you do before this Thursday’s ME debate?

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Listen to this article on #MEAction’s Soundcloud here This Thursday 24th January, myalgic encephalomyelitis (ME) will be discussed in the main chamber of the House of Commons, as Members of Parliament from all Parties debate a motion on ME put forward by Carol Monaghan MP.  We want this debate to be ...

UK Parliament will debate ME in historic House of Commons debate

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UK PARLIAMENT WILL DEBATE ME IN HISTORIC HOUSE OF COMMONS DEBATE FOR IMMEDIATE RELEASE Parliament has announced that it will debate the treatment and funding of patients with myalgic encephalomyelitis (ME), a debilitating and serious, multi-systemic disease. The ME debate will take place in the Main Chamber on Thursday afternoon, 24th January ...

Stuart Murdoch’s open letter ahead of the ME Debate

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Stuart Murdoch is the lead singer of Belle and Sebastian. He has had ME for 28 years and he has kindly shared with us this open letter to the UK government ahead of the ME debate on Thursday, 24th January. Dear UK Government, I am one of the 250, 000 people ...

Take Action Now! The UK debate on ME has been granted

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Listen to this article on #MEAction’s Soundcloud here We are delighted that Carol Monaghan MP has managed to secure a debate in Parliament on Thursday afternoon, 24th January. This debate has been confirmed by the Backbench Business Committee and will take place in the Main Chamber. Carol Monaghan has been pushing ...

UK: MPs fight for a crucial parliamentary debate on ME

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Carol Monaghan MP presented her application for a debate on ME to the Backbench Business Committee on Tuesday October 30th supported by Nicky Morgan MP, Steve Pound MP and Kelvin Hopkins MP. The application was also supported by over 30 other MPs from across the political divide at a crucial ...

#MEAction keeps up the political heat of ME in the UK Parliament

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A productive and extremely positive meeting on the current developments on ME in the UK took place on Monday, 22nd October in the UK Parliament. Carol Monaghan, MP, and David Tuller, a Senior Fellow in Public Health in Journalism at the Center of Global Public Health, School of Public Health, ...

Meet with your MP about ME – Our Toolkit shows you how!

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Advocates at #MEAction UK are working hard to engage Members of Parliament in the fight for appropriate clinical care and investment in biomedical research for ME. Gaining MPs support in lobbying for change is vital to our success. So whether you are a person with ME, their carer, friend, family ...