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Category Archives: Global

NOT ENOUGH! Sign the Petition Calling on the NIH to Take REAL Action for ME!

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Not. Enough. Those are the two words the National Institutes of Health (NIH) needs to hear from all of us about their recent plan to address the myalgic encephalomyelitis (ME) crisis. The NIH already knows what they need to do but they refuse to allocate enough resources to get it done. Dr. Koroshetz’s plan ...

Evelien’s Journey to Meet the EU Parliament

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Hi everyone! First of all I would like to express my heartfelt thanks to all who contributed to the success of the petition that asks for the EU to fund biomedical research on ME. So many people helped out by writing to their MEPs, translating documents, making phone calls, sharing the ...

Race, Ethnicity and M.E.: Why We Need to Build a More Inclusive Movement and Why it Matters.

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Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of ...

Join #MEAction’s Board of Directors

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#MEAction is building a global movement to fight for recognition, education and research so that one day, all people with ME will have access to compassionate, effective care. We are currently seeking patients, caregivers, and allies with one or more of the following experiences to join our Board of Directors: Have ...

Are you Disabled? How does ME fit into the Disabled People’s Movement?

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Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of ...

Inside / Outside Activism: Why We Must Shout in the Streets and Sit at the Table.

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Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of ...

Why Civil Disagreement and Respect are Essential to the ME Movement

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VALUES & POLICY INITIATIVE Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of ...

Why We Must Build an Open, Grassroots Movement

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Listen to the article:  Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate ...

Join Our Values and Policy Initiative

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Listen to the article:   On behalf of #MEAction International’s board, staff, volunteers and everyone who form a part of our wider community, I want to welcome and invite you to participate in what we are calling “Values and Policy,” an ambitious, six-month initiative to learn, engage, debate and ultimately devise the ...

Values & Policy: Outcome of our November Poll

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Listen to the article:   #MEAction’s Values & Policy initiative has evolved out of the need to better clarify our values, tactics and positions so that we are more unified in our work as a large, diverse community.  As a first step, we asked the community last November to take a survey to ...