Severe ME Artists Project — Gallery
July 29, 2021
11 Comments
A collection of works by artists with severe ME.
Category: Community
Connecting Black People with ME and/or long Covid in the UK
July 16, 2021
No Comments
Darren Randon, a poet, qualified teacher, community builder, facilitator, host and co-founder of Well Versed Ink from Thornton Heath, is launching a new group aimed at supporting Black and Black-mixed people with ME and/or long Covid in the UK. The group plans to create a safe space to share experiences and create community with the
#MEAction CA—Article & Interview Published in Medical Board of CA’s Newsletter
July 15, 2021
No Comments
#MEAction CA’s advocacy work resulted in getting an article & interview published in Medical Board of CA’s newsletter!
Severe ME Artists Project
July 12, 2021
11 Comments
#MEAction is excited to announce our Severe ME Artists Project which will feature work from those within the severe ME community in honor of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their artwork (whether it be writing, photography, drawing, singing, or any other medium that illustrates their talents) with multiple ways to participate based on a person’s energy levels.
The #MEAction Community Making Waves in June!
June 21, 2021
No Comments
There is so much going on in our wonderful community that we wanted to make sure you did not miss out on the latest successes, events, and updates! Take a look at #MEAction’s community round-up below.
Read More from the Writing from our ME Lives Group
April 13, 2021
2 Comments
#MEAction is excited to share more work from the Writing from our ME Lives writing group!
read Pieces from Writing from our ME Lives Group
April 9, 2021
2 Comments
#MEAction is excited to share two pieces of work from the Writing From Our ME Lives writing group. We will be sharing more work in the coming days! Hope you enjoy their work. If you are interested in joining the next Writing From Our ME Lives meeting, they meet on every Thursday at 11am PST.
Telebriefing was a success!
March 29, 2021
4 Comments
We were thrilled at the outcome of the #MEAction press briefing last week where we invited a panel of experts to discuss the intersection between long COVID and myalgic encephalomyelitis (ME) to the media. The panelists made it crystal clear that a subset of long haulers are meeting the criteria for ME, and that it
#MEAction’s ACTIVIST CAMP! – the Highlights!
February 23, 2021
No Comments
It’s a wrap! Last weekend concluded the final session #MEAction’s first ever ACTIVIST CAMP!, a teach-in series for activists in the United States. We are so proud of this program and what it has accomplished. Congrats to our new grads! #MEAction ACTIVIST CAMP! aimed to deepen our campers’ engagement with activism – teaching our collective
Hospital Trying to commit person with severe ME to mental health ward
January 29, 2021
27 Comments
PwME appeals for help “They’re trying to commit me to a mental health ward with very severe ME… I need help.” This how a brief and urgent email appeal to #MEAction began last Friday. The email was from Thane Fredrickson (also known as Thane Black on social media), a person with very severe ME who