This is me, my story, I am one of the millions missing. I may not look ill to you, but if you see me, it will be because I am having a ‘good’ day because I am well enough to be able to get dressed and leave the house. The rest of the time I
NINDS director, Dr. Walter Koroshetz, sent the following response to #MEAction’s Oct. 21st letter calling on the NIH to take immediate actions to address the crisis of myalgic encephalomyelitis (ME). We analyze Dr. Koroshetz letter in blue text below to put his statements into context with the reality of what is happening with the ME crisis. JOIN
#MEAction’s Postcards to Doctors initiative has continued to be an incredible success! Thanks to the hard work of the #MEAction community we have sent postcards to nearly 6,000 clinicians across the United States. We could not have done this without the invaluable contributions from the artists who designed our postcards. #MEAction would like to
Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of principles and values as well
Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of principles and values as well
Today Evelien Van Den Brink spoke powerfully and brilliantly to the Committee on Petitions in the European Parliament from her stretcher. Evelien laid out both an emotional and scientific appeal for biomedical funds for ME. She ended her appeal by saying “On behalf of all patients, I am asking you, please don’t look away. We
Colorado activist, Jim Lutey, has introduced a Rotary Club resolution to encourage research, education and funding for myalgic encephalomyelitis (ME!) [maxbutton id=”17″ url=”http://www.meaction.net/wp-content/uploads/2019/10/me-cfs-resolution-proposed-by-dist.-5440-3-13-2019-4-1.pdf” text=”Read the Resolution” ] The resolution’s purpose is to “leverage Rotary’s worldwide reputation and expertise on polio eradication to raise awareness on the need to educate the public and medical practitioners on
Great news! Postcards to Doctors has relaunched as of today, October 1! You can now request new postcards and addresses here. If you requested postcards or addresses during the month of September, we’ve resumed generating addresses and sending postcards as of today, and you should receive yours within the next few weeks. Want to learn
Photo is of Rosie with her niece 10 years ago. Today we honor the life of Rosie Bayman who died from severe myalgic encephalomyelitis (ME) one year ago, today.* Rosie, from Warwickshire, England, had ME for five years before she died. Rosie wrote poetry in her head when she had to lie in darkness and in silence,
California advocates for myalgic encephalomyelitis (ME) are fighting for the state to institute a statewide Centers of Excellence program that would train ME specialists, provide state-of-the-art treatment for people with ME, and undertake advanced research. Activists across the state have already met with 24 state legislators to discuss this initiative. Activist and parent of a
