Category: Awareness

MedPage Today: ME/CFS is Gaining Attention

MedPage Today Focuses on Need for Recognition of ME/CFS and Research Funding MedPage Today, a news site for medical workers, published an article about ME/CFS that mentions the #MEAction campaign to increase federal research funding. The article gathered quotes from top ME/CFS researchers Leonard Jason and Lucinda Bateman, and it summarized the findings of the recent

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Stage Your Screening of Forgotten Plague!

We’re proud to announce that our new partnership with Tugg is now LIVE! Tugg is a “theatrical-on-demand” platform that gives documentary fanbases like ours access to 90% of the movie theaters in the United States. Tugg helps you book a movie theater near your home, advertise, sell tickets, and stage a high-caliber screening to build

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Contractor: Help CDC Develop ME/CFS Materials from IOM Report

CDC – Collaboration to Develop ME/CFS Educational Materials Based on IOM Report The CDC is requesting quotes from business of all sizes to assist them in the development of ME/CFS educational materials based on the IOM reports. Specifically, they are looking for contractors to assist with professional, administrative, and management support services. From FedBizOpps.com: The

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Couple battles ME and HIV

The moving story of Franky, an ME patient and Randy, his HIV positive caretaker and partner. Every once in a while there along comes a story that leaves even me teary-eyed. Waking up this afternoon after my siesta, I opened my email to discover this true gem from the Huffington Post Blog of Dr Franky Dolan. I

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Suffering the Silence Campaign for M.E.

Write “M.E.” on your left hand or forearm (if you do not want to use marker on your skin, you can improvise with a piece of paper as many have done). Cover your mouth with your hand and make sure to look into your camera lens. Upload to Twitter or Instagram with the hashtags: #sufferingthesilence #MEAction and #severeme. If you are on Facebook, you will need to post to The #MEAction Network page AND use the hashtags above.

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Four ways to Observe Severe ME Awareness Day

Saturday, August 8th is Severe ME Day. It is a day of awareness raising for those suffering severe myalgic encephalomyelitis as well as a day of remembrance. August 8th was the birthday of Sophia Mirza, a 32 year-old woman who died of ME. Here are three ways you can observe the day: 1) Join the Twitter

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