#MillionsMissing is calling for some literal boots on the ground, and the deadline is fast approaching. If you want your shoes to be displayed at the U.S. main protest in Washington D.C., your shoes must be postmarked no later than May 12. If you send your shoes past this date, they may be used for
#MEAction proudly announces the launch of its #MillionsMissing Zazzle Store! You can purchase #MillionsMissing tee shirts and buttons for the upcoming protest on May 25. We encourage protesters to wear them to the event as well, to create a visual cohesiveness. However, you are welcome to wear a red shirt of your choosing, or any
Gemma Climbs Her Mountain uses both my story and the testimony of over 200 patients to convey the awful reality of living with this disease.
On May 25, 2016, #MEAction is sponsoring a community-organized protest at Departments of Health and Human Services (HHS) across the country, and in cities all over the world. As a community, we are bowled over by the response. The protest started as a single effort in Washington, D.C., but as of today there will be
Introducing the #MillionsMissing Profile Filter App! This app was designed to help raise awareness for the millions of people living with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). It lets you add a special theme to any picture you choose so that you can upload it to your social media profiles to show your
Dr Jarred Younger has completed another in his ongoing series of live webinars and recorded videos on his research into ME/CFS, fibromyalgia and Gulf War Syndrome (GWS) at the University of Alabama. Dr Younger is Director of the Neuroinflammation, Pain and Fatigue Laboratory at the university. The latest webinar was Part II of a Q&A
ANNOUNCING MEETING ABOUT THE DEMANDS These demands were originally intended for a protest in Washington D.C. alone, but over time, #MillionsMissing has grown into a national, multi-city protest. With that in mind, we will have an open community meeting on Wed. May 11th, 2 pm EDT to discuss the demands and hear any questions or
#MillionsMissing now has an address where you can send your shoes! We are asking patients who are unable to make it to the physical protest locations to please donate one pair of shoes to the address below and we will display them in their honor at the Washington, DC protest. You can send a pair of
Many of us have already seen and signed Mary Gelpi’s petition asking the NIH to increase its research budget for ME/CFS funding to $100 million. Her groundbreaking petition has already netted 27,000 signatures as of this post. In Mary’s own words: I am only 31, and yet, everyday things like taking a bath exhaust me.
On Saturday, 7 May 2016, Mike Sutton will begin a 240-km (150-mi) journey along the Camino del Norte to raise awareness and generate more funding for ME/CFS. Mike is dedicating each day of the ten-day walk to an ME/CFS sufferer, using the hike as a platform to tell their story, share a picture of them during
