Category: All News

Promote your Action at #MEAction: Why and How

Why should you promote your action at #MEAction? This article is part of an ongoing series highlighting different #MEAction features and how to use them. For more how-to and informational articles, please see all the articles on the resources page. You are doing incredible things for the Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) community and we

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Create a Petition at #MEAction: Why and How

Create a Petition at #MEAction This article is part of an ongoing series highlighting different #MEAction features and how to use them. For more how-to and informational articles, please see all the articles on the resources page. Petitions are a great way to organize a group of people and show the amount of support for

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Create an Event at #MEAction: Why and How

Why should anyone create a #MEAction event? This article is part of an ongoing series highlighting different #MEAction features and how to use them. For more how-to and informational articles, please see all the articles on the resources page. There are so many things happening in the Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) community! Don’t let

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Behind the Numbers of the #MEAction Funding Equality Petition

Why $250,000,000 in research funding? The #MEAction flagship Funding Equality Petition is called “Tell Congress to Support Funding Equality for ME” because we’re asking the United States Congress increase NIH Research funding for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) to $250 million per year. Most patients, doctors, and researchers in the ME/CFS community agree

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#MEawarenesshour Special Post Exertional Malaise Hour

#MEawarenesshour: first symptom-themed hour, 24th June Next Wednesday (24th june) we’ve decided to try something a little different for #MEawarenesshour. Instead of talking in general about ME we would like to focus on one of its major symptoms, PEM – Post Exertional Malaise. Why? Because PEM is one of the most misunderstood symptoms of ME

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Ian Lipkin and Mady Hornig respond to the #ChilliMEchallenge

Researchers at Columbia CII have taken on the #chilliMEchallenge – and they just made it a whole lot spicier! The #chilliMEchallenge hit ME/CFS social media by storm. Four young women with ME/CFS got together and issued a fun challenge — to eat a hot chilli or donate to ME/CFS research at Columbia — throughout our

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The NIH talks ME/CFS: The P2P Workshop Report

The National Institutes of Health have released the results of their 1.5 day workshop on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. The full P2P workshop abstract is available online but some of the most interesting and important points are excerpted below. Leave a comment and tell us, what do you like about the report? What don’t you

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UPDATE: #MEAwarenesshour reaches beyond Myalgic Encephalomyelitis Patients

#MEAwarenesshour uses Twitter to reach beyond the ME/CFS patient community From the organizer, Amanda Carroll: The 10th of June #MEawarenesshour: only our second ME awareness hour and what a success! There was a great response, hundreds of tweets and it turns out that doctors, pharmacist and health workers around the world tuned in to read

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