Category: All News

Behind the Numbers of the #MEAction Funding Equality Petition

Why $250,000,000 in research funding? The #MEAction flagship Funding Equality Petition is called “Tell Congress to Support Funding Equality for ME” because we’re asking the United States Congress increase NIH Research funding for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) to $250 million per year. Most patients, doctors, and researchers in the ME/CFS community agree

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#MEawarenesshour Special Post Exertional Malaise Hour

#MEawarenesshour: first symptom-themed hour, 24th June Next Wednesday (24th june) we’ve decided to try something a little different for #MEawarenesshour. Instead of talking in general about ME we would like to focus on one of its major symptoms, PEM – Post Exertional Malaise. Why? Because PEM is one of the most misunderstood symptoms of ME

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Ian Lipkin and Mady Hornig respond to the #ChilliMEchallenge

Researchers at Columbia CII have taken on the #chilliMEchallenge – and they just made it a whole lot spicier! The #chilliMEchallenge hit ME/CFS social media by storm. Four young women with ME/CFS got together and issued a fun challenge — to eat a hot chilli or donate to ME/CFS research at Columbia — throughout our

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The NIH talks ME/CFS: The P2P Workshop Report

The National Institutes of Health have released the results of their 1.5 day workshop on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. The full P2P workshop abstract is available online but some of the most interesting and important points are excerpted below. Leave a comment and tell us, what do you like about the report? What don’t you

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UPDATE: #MEAwarenesshour reaches beyond Myalgic Encephalomyelitis Patients

#MEAwarenesshour uses Twitter to reach beyond the ME/CFS patient community From the organizer, Amanda Carroll: The 10th of June #MEawarenesshour: only our second ME awareness hour and what a success! There was a great response, hundreds of tweets and it turns out that doctors, pharmacist and health workers around the world tuned in to read

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Living with ME Radio interview

Radio Interview about living with ME on RTE – The Irish National Radio station After the article about living with ME/CFS was posted in the journal.ie  I was invited to do a radio interview along with Sarah Meehan who is also living with ME [button_color url=”http://www.rte.ie/radio/radioplayer/rteradiowebpage.html#!rii=9%3A20794540%3A15036%3A10%2D06%2D2015%3A” content=”Listen to the full interview” target=””] Best wishes to all.

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Virscan: 1 Test for every virus that has ever infected you

Excerpted from Science and Popular Science A new test called VirScan would allow a patient to be tested for hundreds of viral infections at the same time. “To see if a patient has ever been infected by a particular virus, researchers expose antibodies in the patient’s blood to molecules with the virus’ molecular signature. In

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Update: Occupy USDOJ Demonstration in Washington DC

The demonstration has kicked off yesterday June 1st, with a great start, at the Justice Department in Washington DC.  The aim of this demonstration is to “occupy” as long as possible.  Their permit is valid till July 4.  Some demonstrators plan to stay a week.  Others will try to stay till the end. The objective

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