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#MEAction welcomes our new deputy community organizer

Paige is a recent graduate from NC State University with a degree in biomedical engineering. She was diagnosed with POTS five years ago and has been inspired to make a difference for those living with chronic illness. Paige started a disability transportation service at her university and plans to use those collaborative skills as Deputy

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#MEAction welcomes our new community organizer

Adriane Tillman is a writer, journalist, traveler, thinker, lover of art, dance and books. Adriane graduated with degrees in literature and Russian language. She worked as a newspaper journalist for five years, and now consults in marketing and copywriting. She has lived in many places across the US and beyond. She grew up in Cincinnati,

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#MEAction Welcomes our new managing editor

We would like to welcome Jaime to our team at #MEAction as our new managing editor. With an MS, a freelance writing career, and a current teaching position in organic chemistry at the graduate level, Jaime comes to us with a background in writing, education, and science. An active member of Phoenix Rising for over

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Communications with NIH

We wanted to be clear about our communications with NIH since there has been some conflicting information. The founders of #MEAction have never met with Dr Collins, Dr Koroshetz, Dr Nath, or anyone else on the intramural study. We have requested several times to meet with Dr Koroshetz and Dr Nath so that we could share the

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Caravana La Paz: The continued fight for equality in Bolivia

On March 21st, the brave Bolivian AKIPerDis protestors began their 265 mile journey by wheelchair through the Andes mountains to capital La Paz to demand equality and livable disability pensions. The group has already come face-to-face with adversity in many of its forms in the roughly 100 miles that they’ve traveled since the 21st of March. Amidst death

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Three Biomarker Discoveries in March

March 2015 has been a busy month for biomarker discoveries for patients with chronic fatigue syndrome (Fukuda criteria), Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Canadian Consensus Criteria) and International Consensus Criteria ME.

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