The article Professor Stephen Holgate: UK has “dream team” for Grand Challenge has raised significant concerns in the patient community. As managing editor, I would like to take this opportunity to clear a few things up: 1) The article is not from Holgate, but from a longtime, British writer for #MEAction who has written over 30
Professor Jonathan Edwards, along with several ME/CFS patients and a carer with scientific backgrounds have co-authored a peer-reviewed editorial on the disease that appears in the latest issue of the journal Fatigue: Biomedicine, Health & Behavior. The article is titled, The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem. The paper has gained
Professor Chris Ferguson has called the PACE trial authors’ failure to release data from the trial one of “the most dramatic pieces of ‘bad news’ for academic psychology during 2015.” He made his remark in the May issue of the British Psychological Society’s official magazine, The Psychologist, which is read by the Society’s 50,000 members.
________ Note: This article has been updated to provide context about the long-running controversy over the CMRC’s inclusion of of not only biomedical scientists but of researchers who take a biopsychosocial approach to ME/CFS. Some of this context was supplied in our earlier piece announcing the livestreaming of the AGM but we accept that many
A pdf of this article is now available here. On 21 April Dr Avindra Nath gave a Solve ME/CFS Initiative webinar hosted by Dr Zaher Nahle. The phrase that stood out in Dr Avindra Nath’s description of the NIH ME/CFS study was ‘world-class’. He emphasized the innovative technology the NIH has at its disposal, and
The Centre for Welfare Reform has published a 64-page report criticising the PACE trial and relating the study to the debate over welfare reform and cuts to disability benefits in the UK. The report’s author, George Faulkner, discusses how the biopsychosocial model has helped create a climate in Britain in which the sick are seen
The 2016 Annual General Meeting of the UK CFS/ME Research Collaborative (CMRC) will be livestreamed on Wednesday 27 April, from 2.45 pm to 3.30 pm British Summer Time. Viewers must preregister. The agenda of the AGM is as follows: Welcome and apologies Annual report 2014-15 Charter revisions/approval Plans for 2015-16 Membership of the Board Any other business
Dr. Zaher Nahle from the Solve ME/CFS Initiative recently interviewed Dr. Avi Nath, who is leading the intramural study on ME/CFS at the NIH. The intramural study on ME/CFS at the NIH has raised some concerns in the ME/CFS community: the appointment of Dr. Walitt, who has made statements implying that he views ME/CFS as
Last week, #MEAction had its first planning call for the May 25th #MillionsMissing protest. The protest, with the theme #MillionsMissing, brings attention to the millions of people with ME/CFS missing from their work, their families, and their lives, and the millions of dollars missing from research funding. To show this invisible illness, we are asking
On 20 April, the UK’s General Medical Council (GMC) imposed limits on the medical license of Dr Nigel Speight, well known for his work in protecting children with ME/CFS against inappropriate psychological intervention and removal from their families. The limits come after a complaint from Esther Crawley, medical advisor to the Association of Young People with ME.
