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Category Archives: Great ideas

ME Friendly Forms of Escapism, and How Best to Undertake Them

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Jack Croxall is an author, scriptwriter and blogger living in Nottinghamshire, UK. He fights ME both in life and in prose. Follow him on Twitter, on his blog, and view his books.  When you’re dealing with the symptoms of ME every minute of every day, it’s obviously difficult to forget that ...

A song for ME: Blowin’ in the Wind

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    The following arrangement of Blowin’ in the Wind, with alternative lyrics about the struggles faced by people with ME, is performed by patients and their carers from around the world: If you would like to play and/or sing this song at a #MillionsMissing protest on 12 May, or at any other event, ...

Sharing UNREST through Library Donations

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  Activism doesn’t always have to take place in government offices or with signs and shouting; it can take place in quiet libraries. Library systems are the target of Cindy Downey’s efforts to make Jen Brea’s documentary Unrest accessible to all. Downey, of British Columbia’s Okanagan Valley, donated copies of Unrest to ...

Host a dinner to fundraise for ME/CFS researchers

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“Dining for Dollars” is a fund raising idea from the AIDS era and we hope to spread the idea by posting the results of our own dinner held this past weekend ...

Visual ideas for your #MillionsMissing protest

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Have ideas on how to improve this document? Email millionsmissing@meaction.net Protests are opportunities to grab attention, to crystallize all of the emotion (anger, rage, grief, loss, hope, love) of our everyday into a single image. To tell the story of a people demanding justice against a system that -- whether through ...

Wheelchair users in Bolivia suspended from bridge in protest

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A small group of wheelchair users suspended themselves from a bridge in Bolivia to protest treatment of disabled people and demand higher government benefits. Received international news coverage. Read more ...

Add this PACE petition counter to your website

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Use this code to add a PACE petition counter to your blog or website. It links back to the original petition and is a great way satisfy your PACE petition mania from the comfort of wherever on the internet you call home: You'll need to format the font, colors, etc. to ...
Man doing ALS Ice Bucket Challenge

Ice Bucket Challenge funds breakthrough

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The ALS Ice Bucket Challenge raised more than $100 million, which resulted in a research breakthrough ...

Suffering the Silence: Portraits of Chronic Illness

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This beautiful photography project, Suffering the Silence, aims to make more visible the millions of Americans suffering from invisible illnesses: The stigma surrounding chronic illness can leave people feeling misunderstood, alone, dismissed, and silenced. When someone doesn’t look visibly sick, one can often forget what their life is like behind the ...

Spain hologram protest

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Activists in Spain, after a new gag law curtailed the freedom to protest in front of Congress or parliament buildings, staged what may be the world's first hologram protest. Holographic projection opens up a whole new world of possibilities for how to bring to the outside world the images, voices, and stories of patients who ...