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Category Archives: Petitions

Sign the petition to ask the EU for increased funding for biomedical research into ME

Sign a petition to ask the EU for funding for biomedical research

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Hello EU! The best way to combat a hopeless situation is to act! Please help us by signing a petition that asks the EU for increased funding for biomedical research into ME. There are about 2 million ME patients in the EU. That’s only an estimate, because reliable figures aren’t even available. But ...

Join the fight against stigma and pseudoscience in New York

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This weekend, the New York State Psychiatric Institute is hosting a conference on psychosomatic illness at Columbia University Medical Center -- and they invited Per Fink to speak.  If you have watched Unrest, you know that Fink’s clinic was responsible for the involuntary institutionalization of Karina Hansen, a Danish young ...
Individuals who were lied to and misrepresented by Netflix’s Afflicted include (left to right): Jake, Pilar, Jamison, Jake & Bekah, Jill & Janine

Open Letter Demands Removal of Netflix’s “Afflicted” – Sign the Petition

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On September 18th, more than 40 writers, activists, artists, filmmakers, physicians, and scientists came together to write an open letter to Netflix to request that Afflicted be immediately removed from the service. "We are deeply concerned about its unethical treatment of its subjects and its many factual errors and omissions," states ...

Stop CDC from Hiring Shoddy Contractor for ME Treatment Guidelines!

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PETITION UPDATE (Tuesday, September 11, 2018) The CDC has posted an updated, competitive bid solicitation for the development of federal treatment guidelines for ME. The community outcry, and over 8,000 petition signatures, protesting the previous rigged, sole-source contract got the CDC's attention. Yet the solicitation is still only open through Thursday, September ...

Join us in the #isignedfive challenge!

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Want a way to raise your voice this #MillionsMissing but don’t know how? Perhaps you’re unable to attend a protest in person, or want to do a little something extra to make a difference. The stopGET petition against graded exercise therapy trials is one of the most vital actions circulating at ...

Ask NIH to fund an Ampligen Trial Today!

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Join our response to the NIH Request for Information: we seek NIH funding for ME/CFS clinical trials starting with Ampligen as the closest medication to approval for our disease ...

UK: sign the petition close to forcing government response

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A petition for more biomedical research funding for ME/CFS that was started in January is only 2,000 signatures short of the 10,000 needed to force the UK government to issue a response. The signatures must be gathered by 13 July. The petition is on the UK Government and Parliament Petitions site, ...

Act now! Our #MillionsMissing Round-Up

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Hello, everyone! It's only three days until the #MillionsMissing protest, so it's time to review what's gone on so far, and discuss what you can do to help ensure we are heard by our governments! Locations: So, your protest has gone out into the world and is now in a dozen different ...

Petition: #MillionsMissing teams up with Mary Gelpi for research funding

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Many of us have already seen and signed Mary Gelpi's petition asking the NIH to increase its research budget for ME/CFS funding to $100 million.  Her groundbreaking petition has already netted 27,000 signatures as of this post.  In Mary's own words: I am only 31, and yet, everyday things like taking ...

PETITION: ME is not MUPS (Medically Unexplained Physical Symptoms)

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Dutch ME patients strongly disagree with the composition of the Dutch Health Council ME Committee and start petition “ME is geen SOLK” (ME is not MUPS). On March 29th 2016, the Dutch Health Council announced the names of the members of a newly formed Committee that has the important task of ...