We humbly ask for the community’s help to fundraise for a field worker in Auckland, New Zealand. We hope to set a precedent for the international community, providing a platform for other countries to campaign for their own field workers
Every Wednesday #MEawarenesshour is a set time to tweet and share stories about the illness, personal experiences, research, funding events, charities, artwork and poems on the subject, general awareness and hopefully put right a few misconceptions.
28 Marathons for Myalgic Encephalomyelitis Awareness and Research I’ll be running a marathon in each of the 28 EU member countries to raise awareness and much needed funds for biomedical research into ME & for the charity Invest In ME I’m aiming to raise funds and awareness for biomedical ME research across the 28 countries
Take The Chilli M.E. Challenge. The Chilli M.E. Challenge is an advocacy initiative started by four girls who met on Facebook and decided that something had to be done to spread awareness to those that don’t have ME and also to raise much needed funds for biomedical research for Myalgic encephalomyelitis (ME)/ Chronic Fatigue Syndrome
www.meagain.org
We are conducting a research study because we are trying to learn more about what occurs before and during post-exertional malaise for individuals with Myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS), as well as how these individuals define the term post-exertional malaise. We are asking you to be in the research because you have a diagnosis of ME or CFS, speak English, and are 18 years of age or older. If you agree to be in this study, you will be asked to complete a survey. The survey will include questions about your post-exertional malaise experiences related to your ME or CFS. We will also collect some personal and demographic information about you, such as age, gender, race, marital status, income, level of schooling, disability information, and work status. The full survey can be completed online. If there is a question you do not want to answer, you may skip it.
As part of our OMF End ME/CFS Project, this study will conduct a comprehensive, “Big Data,” analysis on severely ill ME/CFS patients with the goal of finding sensitive and distinctive molecular biomarker(s). Very little research has been done in the bedbound. severely ill patients because they are hard to reach. By looking at the simple
The Microbe Discovery Project began as a patient-driven crowdfund to raise funds for world-class researchers Dr Ian Lipkin and Dr Mady Hornig at Columbia University’s Center for Infection and Immunity (CII), New York. Research into ME/Chronic Fatigue Syndrome is sorely needed and there is a paucity of research into the illness. Patients raised a whopping
DePaul University’s Center for Community Research (under the leadership of Dr. Leonard Jason) is currently recruiting respondents for a study on myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) mortality.
Tired of reading news about ME and seeing images of people slumped at their desks or yawning? Submit your REAL photo to the flickr group. Help us create a pool of stock photos that authentically portray the experience of living with ME. The photos will be made available to newspapers and magazines. [button_dark url=”https://www.flickr.com/groups/meaction/pool/” content=”Submit your stock photos!”
