The UK’s National Institute for Health Research (NIHR) is asking for suggestions from patients, carers and members of the public for tests and treatments that need to be researched.
John Oliver, please talk about ME/CFS Funding! Please sign up/login to HBO’s “Last Week with John Oliver” page to “like” and comment on the topic idea of funding for ME/CFS: Ask John Oliver to talk about ME/CFS Funding! For those of you not familiar with “Last Week Tonight with John Oliver” – it has become
Write “M.E.” on your left hand or forearm (if you do not want to use marker on your skin, you can improvise with a piece of paper as many have done). Cover your mouth with your hand and make sure to look into your camera lens. Upload to Twitter or Instagram with the hashtags: #sufferingthesilence #MEAction and #severeme. If you are on Facebook, you will need to post to The #MEAction Network page AND use the hashtags above.
Help Find a Cure for Whitney Dafoe and others like him!
Hearing that funding has been reduced to nothing is heartbreaking. Please hear out these words from something who is suffering, and help him:
ME/CFS is an extremely complex disease that is poorly understood by medical science. To date, much of the research has been conducted on a small scale, targeting single aspects of the disease. Ambitious and groundbreaking, the Solve ME/CFS Initiative’s DEFEAT ME/CFS is a comprehensive plan aimed at mastering the complexity of ME/CFS to render meaningful results, bringing us closer to a cure.
Change For M.E. Change For Us is creating a short film about discrimination and neglect that those living with M.E. must face every day in the medical community. Our volunteers are raring to go, now we just need vital funding…
Use the easy one click letter to send Llewellyn King’s article in the Congress Blog looking for a congressional representative to take on the campaign for ME.
Little bags of happiness for chronic illness sufferers!
As part of the #chilliMEchallenge we are encouraging people to tell us their #myMEstory and create awareness by putting a voice and a face to this illness.
The Artist book consists of a set of loose A5 sheets, gathered in a custom-made wooden box, reflecting on life with chronic illness seen through art and nature.
