On Friday, 30th October, Change For M.E. Change For Us launched their short film, The Last Great Medical Cover Up. The film details the extent of medical discrimination and neglect people living with M.E. are being subjected to every day. The 35 minute documentary features 6 individuals expressing what it’s really like to have a
Given the weak and flawed methodologies of the PACE trial, which claims that CBT and GET led to the recovery of ME/CFS patients, we, the undersigned patients, doctors, scientists, parents, children, family, friends, caretakers and #MEAllies: – call upon The Lancet to retract the claim made in its February 2011 editorial [1] that 30% of
Editor’s note: Michael Evison of ME Alliance has written this letter to the Danish prime minister about Karina Hansen’s case and is asking for signatures of support from all around the world by Midnight October 29th (GMT). [button_color url=”http://sallyjustme.blogspot.se/2015/10/karina-hansen-please-sign.html” content=”Sign the letter” target=””] Dear Prime Minister Lars Lokke Rasmussen, We the undersigned wish to appeal to you,
Editor’s note: Karina Hansen is young Danish woman with severe ME. In February 2013, she was forcibly removed from her home by police and taken to a facility for functional (i.e,. psychosomatic) illnesses. The ME Alliance is organizing an action for Karina’s third birthday away from home. You can help Karina by sending cards and gifts
We’d love to start hosting periodic calls to allow #MEAction members to chat informally with co-founders Jen Brea and Beth Mazur – to ask big picture questions about the platform, brainstorm strategy, and offer suggestions for future directions. As we use Google Hangout for these calls, they are strictly limited to eight participants in addition
Maka a video about ME and make a fuss! (Australia)
The Open Medicine Foundation has just begun a fundraising campaign to raise $8.3K in donations and have it matched 3:1, which will result in $25K + $8.3 = $33.3K!
In the US? Find your state and sign the petition. Not in the US? Sign the global solidarity petition. Share your story, tell congress why we need Mylagic Encephalomyelitis Funding Equality.
I’m working with a national M.E. charity, Action for M.E., as their Volunteer Pharmacist, providing information about pharmacy services, writing health and pharmacy-related articles, and putting together a resource for pharmacy professionals about M.E. I’m gathering thoughts and suggestions from both people with M.E. and pharmacy professionals because it’s important that the resource includes a full picture of M.E.
Vote DAILY between October 6-23, 2015 in the Aviva contest to help the National ME/FM Action Network in Canada win up to $100,000 for research of ME and FM.
