Great news! About six months ago, we began a project to update, expand, and revamp MEpedia. Due to a generous grant, we were able to create a project scope, hire respected experts in accessibility and MediaWiki development, and make several important changes to MEpedia! Visit the New MEpedia MEpedia is a vital resource MEpedia is one of the most utilized resources for researchers,
Listen to this article on #MEAction’s Soundcloud here This Thursday 24th January, myalgic encephalomyelitis (ME) will be discussed in the main chamber of the House of Commons, as Members of Parliament from all Parties debate a motion on ME put forward by Carol Monaghan MP. We want this debate to be the catalyst for substantive
Advocates at #MEAction UK are working hard to engage Members of Parliament in the fight for appropriate clinical care and investment in biomedical research for ME. Gaining MPs support in lobbying for change is vital to our success. So whether you are a person with ME, their carer, friend, family member or ally, we are
I read “How To Survive A Plague: The Inside Story of How Citizens and Science Tamed AIDS” by David France to learn lessons from the AIDS movement that could help ME activism, and to summarize it for people without the energy and/or time to read it. The book tells an amazing story but it is
Timbre Livesay and Mary Dimmock contributed to this article. This is an outline of the steps a California ME advocate, Mark Camenzind, took for getting city proclamations for ME. Below the steps is a template you can use for your own city proclamation. Feel free to adapt either for your city’s needs. As this is
Consider your target It’s only natural that targets might be institutions. Try to address your petition to specific individuals who have the influence or decision-making power to respond to your request. Start with the institution and then think about exactly whose hands you want to put the petition into. The more specific you can be,
Why should you promote your action at #MEAction? This article is part of an ongoing series highlighting different #MEAction features and how to use them. For more how-to and informational articles, please see all the articles on the resources page. You are doing incredible things for the Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) community and we
Create a Petition at #MEAction This article is part of an ongoing series highlighting different #MEAction features and how to use them. For more how-to and informational articles, please see all the articles on the resources page. Petitions are a great way to organize a group of people and show the amount of support for
Why should anyone create a #MEAction event? This article is part of an ongoing series highlighting different #MEAction features and how to use them. For more how-to and informational articles, please see all the articles on the resources page. There are so many things happening in the Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) community! Don’t let
