Category Archives: Featured actions

What ME Activists Can Learn from the AIDS Crisis

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I read "How To Survive A Plague: The Inside Story of How Citizens and Science Tamed AIDS" by David France to learn lessons from the AIDS movement that could help ME activism, and to summarize it for people without the energy and/or time to read it. The book tells an ...

Don’t Miss the CFS Advisory Committee Meeting This Wednesday & Thursday

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CFSAC is Wednesday (12/13) and Thursday (12/14) of this week! Please stand with us as we continue to urge the U.S. government to fund ME fairly and equally. View the calendar event here. This Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting will take place at the Hubert H. Humphrey Building, 200 Independence ...

UNREST: Best Practices for Hosting a Community Screening

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This guide will provide you with ideas for hosting your own impactful screening of Unrest that will be well-attended, well-publicized and garner support from important institutions in your community for Myalgic Encephalomyelitis (ME).   Community screenings of Unrest have taken place all over the globe. While all successful events can look ...

Living w/ ME Support Group: November & December Schedule

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Our November and December schedule for the Living w/ ME Support Group has just been announced. Sunday, November 12: Avoiding Crashes Sunday, December 10: Surviving the Holidays For those who want to get involved in shaping the future of this support group be sure to join our upcoming planning session: Friday, ...

How to Volunteer with #MEAction

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Want to become a part of the global team of #MEAction volunteers? Interested in getting more involved in general or using a particular skill or expertise? Want to better understand how you can use our digital platform and global network for greater ME activism and advocacy? Join us for a live ...

Stanford Med X Conference offers grant for patients & caregivers

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The Stanford Medicine X conference is offering a scholarship to attend the April 28-29, 2018 conference, and receive funding for airfare, hotel, and meals. The ePatient scholarship is open to both patients and caregivers who are engaged or empowered.  Applications are due Nov. 1 at 5 p.m. PT (8 p.m. ET). Apply now Ryan ...

Hosting a Screening of Unrest? Learn How to Talk to the Press

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If you are hosting a screening of Unrest in your community, you will want to reach out to your local press about covering the screening. Below are some training resources to help you prepare to speak to the media. These tools were developed by #MEAction for the #MillionsMissing Day of ...

Urge your MP to sign EDM 271!

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We need your help for parliament to recognise the strength of feeling about NICE guideline review ...

Explore the Science on ME

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Leading scientists presented their research on ME/CFS at the day-long Community Symposium on the Molecular Basis of ME/CFS* at Stanford on Aug. 12. The researchers spoke at length about the complicated biological processes involved, their study results and the limitations of their conclusions presented thus far. The amount of science on ...

3 Ways You Can Join in a #TimeforUnrest

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Update: View a recording of the call here -  --------------------------- The September kickoff of the #TimeforUnrest campaign is just around the corner, and we at #MEAction couldn't be more excited! Last week we recorded our first community call where we got to know the Unrest team, hear about the film's release plan and got a sneak peek into the impact ...
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