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Category Archives: Featured actions

Thank The Senate Resolution Co-Sponsors!

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Thank The Senate Resolution Co-Sponsors! This past weekend we celebrated the passing of the bipartisan Senate Resolution, S.Res. 225, in honor of International ME/CFS Awareness Day. Now is the time to thank the lead sponsors, Senator Markey and Collins, plus the other 13 Senators who co-sponsored this historic resolution!!   Two Ways ...

Twitch Gaming Show Fundraises for #MEAction!

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Rat Queens, a show on the popular Twitch channel, HyperRPG, is hosting a fundraiser for #MEAction this Wednesday, May 8th at 7pm PST. Twitch is a live streaming platform and anyone can watch and participate from their homes! 100% of  the proceeds will go to #MEAction. Rat Queens (based on the Image Comic ...

Urgent – Contact Your Senators Now to Co-sponsor the ME/CFS Awareness Day Resolution

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***UPDATE: THIS ACTION IS NOW OVER***   Please contact your SENATORS and urge them to co-sponsor a ME/CFS Awareness Day Resolution NOW! Although the original co-sponsors would like to receive sign-ons as soon as possible and ideally by COB Wed, May 8th, they’re willing to accept co-sponsors up until the passage of the bill, ...
#MillionsMissing in Edinburgh

Q&A with #MillionsMissing UK Organisers

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On Thursday 18th April, #MEAction UK held a conference call with organisers of #MillionsMissing event past and present from across the UK. There are already events planned for 2019 in all 12 UK regions, with over 25 events in the UK Claire from Southampton, Janet from Edinburgh, Carolyn from Sheffield and Denise ...

Advocacy Week Local Actions

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***UPDATE: THIS ACTION IS NOW OVER***   ADVOCACY WEEK LOCAL ACTIONS As many of you know, Advocacy day is April 3rd in DC. Activists will be traveling from around the United States to have meetings with their elected officials to demand recognition and action for people with ME. No matter if you are ...

Ask Your Senators to Increase Funding for ME Research and Education

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    ***UPDATE: THIS ACTION IS NOW OVER*** Senator Markey is currently asking for support from his fellow Senators for TWO requests that can increase funding for ME! These requests would include: 1) Request $9.9 million for ME programs at the CDC (Labor-HHS committee) 2) Add ME to the Peer-Reviewed Medical Research Program (Defense committee) What our ...

Increased Funding for ME Research and Education

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    ***UPDATE: THIS ACTION IS NOW OVER*** Congressmembers Zoe Lofgren and Anna Eshoo, are currently asking for support from their fellow House Members for TWO requests that can increase funding for ME! These requests would include: 1) Request $9.9 million for ME programs at the CDC (Labor-HHS committee) 2) Add ME to the Peer-Reviewed Medical ...

What can you do before this Thursday’s ME debate?

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Listen to this article on #MEAction’s Soundcloud here This Thursday 24th January, myalgic encephalomyelitis (ME) will be discussed in the main chamber of the House of Commons, as Members of Parliament from all Parties debate a motion on ME put forward by Carol Monaghan MP.  We want this debate to be ...

All I want for Christmas is #ScienceNotStigma

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This Christmas, millions will be missing from parties and celebrations, because of the severity of ME. Yet the National Institute of Health and Care Excellence (NICE, the public body responsible for UK clinical guidelines) have just dismissed legitimate concerns of thousands of people with ME, and their friends, family and ...

Contact your CONGRESSIONAL REPRESENTATIVES now!

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***UPDATE: THIS ACTION IS NOW OVER***   Please contact your MEMBERS OF CONGRESS IMMEDIATELY and urge them to sign a bicameral letter to the Department of Health and Human Services (HHS). The joint letter - from both the House and the Senate! - (1) states that more must be done by HHS ...