Caring for People with ME

Myalgic Encephalomyelitis is a complex, challenging disease for everyone involved – not least the caregiver. Caring for someone with ME will require adaptability, steadfast patience and commitment over many years, if not a lifetime.

Caregivers’ Guide

#MEAction has crowdsourced the advice in this guide from caregivers who care for both adults and children to better equip you to navigate the long, convoluted journey of this disease.

Caregivers’ Support Group

The Caregivers Facebook Support Group is a space where caregivers can support one another, discuss their joys and struggles, find community and self-care, and exchange ideas and helpful information. This is a space for caregivers only.

Friends, Family and Allies for ME

FFAME (Friends, Family, and Allies for ME) is a network of individuals who are friends, family, or otherwise allies to people with ME. FFAME has two aims – to support caregivers of people with ME, and to bring healthy allies into the advocacy work.



Learn from people who have ME. Join the Living with ME Support Group on Facebook.


Printable brochure:

A guide for Caregivers – inside and outside.