Browse Actions: Featured actions

Sharing UNREST through Library Donations

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  Activism doesn’t always have to take place in government offices or with signs and shouting; it can take place in quiet libraries. Library systems are the target of Cindy Downey’s efforts to make Jen Brea’s documentary Unrest accessible to all. Downey, of British Columbia’s Okanagan Valley, donated copies of Unrest to ...

Join SMCI on Capitol Hill for ME/CFS Advocacy Day

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The Solve ME/CFS Initiative’s second annual ME/CFS Advocacy Day is May 15th in Washington, D.C. Registration is recommended by April 1st ...

Call-to-Action: Urge your State Health Department to Track ME!

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Urge your state health department to track myalgic encephalomyelitis/ chronic fatigue syndrome! Call-to-Action: Please email your state health department and request they track ME/CFS (we have provided the email script for your convenience). A national conference will take place mid-April where states will decide which diseases to track as part of its ...

Urgent Congressional Action! Ask your Rep. to Sign Letter for ME/CFS

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URGENT Congressional Action! Please take this opportunity to call and email your House representative today to request they sign a letter that inserts favorable language about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) into the House Appropriations Committee report for the FY19 budget. The deadline for your representative to sign the ...

Activism 101: Educate Medical Providers about ME

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Most doctors, nurses and other healthcare providers belong to a medical association in order to connect to a community of their peers. These medical associations typically send out regular magazines, newsletters and emails about the latest news and topics of interest to the medical field. A great way to begin to ...

PACE Trial ‘medical scandal’ Sparks UK Parliament Debate

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Members of Parliament heard about the flaws of the PACE Trial - and its devastating effects on people with Myalgic Encephalomyelitis (ME) - in a Westminster Hall debate today. Twenty-six MPs attended the debate ...

Watch the Westminster Hall debate on PACE

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A Westminster Hall debate on the PACE trial will take place on Tuesday, 20th Feb., from 11 to 11:30 a.m. Carol Monaghan MP has secured the debate. Watch the Debate or Attend the Debate Follow the debate on Twitter by following @meactnetuk or @MEActNet. The debate will discuss the flawed science behind PACE, and how ...

What ME Activists Can Learn from the AIDS Crisis

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I read "How To Survive A Plague: The Inside Story of How Citizens and Science Tamed AIDS" by David France to learn lessons from the AIDS movement that could help ME activism, and to summarize it for people without the energy and/or time to read it. The book tells an ...

Don’t Miss the CFS Advisory Committee Meeting This Wednesday & Thursday

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CFSAC is Wednesday (12/13) and Thursday (12/14) of this week! Please stand with us as we continue to urge the U.S. government to fund ME fairly and equally. View the calendar event here. This Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting will take place at the Hubert H. Humphrey Building, 200 Independence ...

UNREST: Best Practices for Hosting a Community Screening

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This guide will provide you with ideas for hosting your own impactful screening of Unrest that will be well-attended, well-publicized and garner support from important institutions in your community for Myalgic Encephalomyelitis (ME).   Community screenings of Unrest have taken place all over the globe. While all successful events can look ...

 

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