As part of our OMF End ME/CFS Project, this study will conduct a comprehensive, “Big Data,” analysis on severely ill ME/CFS patients with the goal of finding sensitive and distinctive molecular biomarker(s). Very little research has been done in the bedbound. severely ill patients because they are hard to reach. By looking at the simple
The Brighton Wheel and the Brighton Sea Life Centre were lit up blue last night in support of ME Awareness. A group of ME Mums and Dad’s held posters from Action for ME for photographs that will be published along with an article on ME in the Argus newspaper. The photos were also circulated
According to the recent Institute of Medicine report, up to 2.5 million Americans have chronic fatigue syndrome (ME/CFS). Patients with ME/CFS are more functionally impaired than those with other disabling illnesses, including congestive heart failure, multiple sclerosis, and end-stage renal disease. The NIH funds ME/CFS at $5 million per year, and that amount is estimated by
The Microbe Discovery Project began as a patient-driven crowdfund to raise funds for world-class researchers Dr Ian Lipkin and Dr Mady Hornig at Columbia University’s Center for Infection and Immunity (CII), New York. Research into ME/Chronic Fatigue Syndrome is sorely needed and there is a paucity of research into the illness. Patients raised a whopping
DePaul University’s Center for Community Research (under the leadership of Dr. Leonard Jason) is currently recruiting respondents for a study on myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) mortality.
Activists in Spain, after a new gag law curtailed the freedom to protest in front of Congress or parliament buildings, staged what may be the world’s first hologram protest. Holographic projection opens up a whole new world of possibilities for how to bring to the outside world the images, voices, and stories of patients who are to ill to physically engage
Running a 26.2 mile marathon at the north pole for IiME This is the challenge of a lifetime and it is the result of my daughter having ME since September 2008. I have seen firsthand how damaging ME can be to a person’s life, their prospects and their family. Support Mike’s marathon and raise
A unique pattern of immune molecules in the cerebrospinal fluid of people with myalgic encephalomyelitis/chronic fatigue syndrome have been discovered, providing insights into the basis for cognitive dysfunction –frequently described by patients as ‘brain fog’– as well as new hope for improvements in diagnosis and treatment. Read more here