Author: Jaime S

Cochrane Analysis: What’s Here, What’s missing, Conclusions

Exercise therapy for chronic fatigue syndrome Lillebeth Larun, Kjetil G Brurberg, Jan Odgaard-Jensen, and Jonathan R Price Editorial group: Cochrane Common Mental Disorders Group As of October 2, 2019, the Cochrane review of GET in ME has been re-issued after the evidence was reassessed. You can read the whole review and a quick summary by

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Postcards to Doctors returns!

Great news!  Postcards to Doctors has relaunched as of today, October 1!  You can now request new postcards and addresses here.  If you requested postcards or addresses during the month of September, we’ve resumed generating addresses and sending postcards as of today, and you should receive yours within the next few weeks.  Want to learn

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#MEAction’s Postcards to Doctors is an Unprecedented Success!

#MEAction’s Postcards to Doctors initiative has been successful beyond our wildest hopes!  Since August 1, we’ve received requests for more than 3,500 postcards from hundreds of individuals and groups.  People from all over the United States have signed up to write to their clinicians asking them to take #MEAction’s CME program – we’ve sent out

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Announcing the Art Picks for Postcards to Doctors

#MEAction is launching an initiative that will allow you to help educate your local clinicians, called Postcards to Doctors! Postcards to Doctors will work a lot like Postcards to Voters. The Postcards to Voters campaign leveraged handwritten postcards to individuals in order to encourage them to vote.  Postcards to Doctors will use the same model

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Read #MEAction’s Request for Information response to the NIH

The story so far NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI, or a Request for Information, from the ME community on how to advance research for myalgic encephalomyelitis.   With only a few weeks’ turn-around, the #MEAction NIH working group produced a compelling response based on information conveyed in

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#MEAction Drafts Response to NIH’s Request for Information

NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI, or a Request for Information, from the ME community on how to advance research for myalgic encephalomyelitis.   With only a few weeks’ turn-around, the #MEAction NIH working group met and was able to produce a compelling response based

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Carol Head of SMCI to step down

After five years of advocacy leadership, Carol Head, the President of Solve ME/CFS (SMCI), will be stepping down from her position for health reasons. Head, a graduate of Wellesley and Stanford’s School of Business, contracted ME after a viral infection and was deeply affected for years.  However, she describes herself as “95% recovered” and added

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Get involved: support science and advocacy this April

April is going to be an incredibly exciting month for advocacy and for research into ME! The NIH is hosting a conference on ME in early April along with a Young Investigators Workshop specifically geared towards early-career investigators with interest in ME.  Concurrently, there will be a Congressional lobbying push hosted by #MEAction and SMCI

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A loss to the ME community: Jonas Blomberg

You can listen to this article read aloud by visiting #MEAction’s Soundcloud here. It is with a heavy heart that we announce the sudden passing of Jonas Blomberg. Blomberg was an Emeritus Professor at the Department of Medical Sciences, Clinical Microbiology at Uppsala University in Sweden, active in scientific and medical research: one of his ongoing

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Neuroinflammation review by #MEAction research fellows

Though science may speed along a bit fast to ‘catch’ on audio, you can also listen to me read this article on #MEAction’s Soundcloud here. We are pleased and proud to announce that our two research fellows, Sydney A. Brumfield and Paula S. Lara Mejia, have written and released their first professional science articles about

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