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FFAME

About FFAME

FFAME – Family, Friends and Allies for ME – is a network of support for family, friends, caretakers and allies for ME to come together, support one another, learn more about the disease and the challenges of improving the lives of people with ME. The group also aims to equip allies who wish to engage in advocacy work with the knowledge and tools to do so.

The founders of FFAME are three parents of offspring with ME:  Bobbi Ausubel, Denise Lopez-Majano, and Jane S.

Join FFAME 

Join the ongoing conversation on the FFAME Facebook Group. Join the email list to receive updates or to join the conversation if you’re not active on Facebook. Email us anytime with questions at FFAME@meaction.net.

Join the Call

Our next call will take place on Saturday, Jan. 5th at 1 p.m. California / 4 p.m. New York / 9 p.m. London. RSVP below: 

Join the call

If you haven’t already had a chance to watch Unrest, a documentary about ME, we highly encourage you to do so before the call. You can find it on Netflix. You can also watch the panel discussion about the film here.

News & Articles about FFAME

Dec. 2018 FFAME Minutes: Advocating for ME while Maintaining Privacy

MINUTES: Friends, Family and Allies for ME (FFAME) meeting: Saturday, December 1 Primary Discussion Topic: Advocating for ME while maintaining privacy ...
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Notes from FFAME Sept. 2018 Call

Hi: Greetings from FFAME, Friends, Family and Allies of ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), Welcome: Join us for our second on-line ...
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Calling all Family, Friends and Allies – Join the Movement to Support People with ME

You may have watched your friend or relative struggle with myalgic encephalomyelitis (ME) unsure of what is happening or how ...
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