FFAME – Family, Friends and Allies for ME – is a network of support for family, friends, caretakers and allies for ME to come together, support one another, learn more about the disease and the challenges of improving the lives of people with ME. The group also aims to equip allies who wish to engage in advocacy work with the knowledge and tools to do so.
The founders of FFAME are three parents of offspring with ME: Bobbi Ausubel, Denise Lopez-Majano, and Jane S.
Join the ongoing conversation on the FFAME Facebook Group. Join the email list to receive updates or to join the conversation if you’re not active on Facebook. Email us anytime with questions at FFAME@meaction.net.
Click here to view the events calendar for upcoming FFAME events.
To read minutes from the latest FFAME meeting click here.
If you haven’t already had a chance to watch Unrest, a documentary about ME, we highly encourage you to do so before the call. You can find it on Netflix. You can also watch the panel discussion about the film here.