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#MillionsMissing: “GatherOUND” Event–Community Meet & Greet

At #MEAction we are all about bringing people together. So we are excited to announce the return of our community Gatheround (previously known as Icebreaker) events for #MillionsMissing! Join the #MEAction community for a fun gathering, where you will be able to connect with people around the globe, participate in easy get-to-know-you games, and chat with …

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Free

#MEAction Maryland #MillionsMissing – Rest Fest Tea Party for M.E.

Join #MEAction Maryland in your PJs with your favorite filled mug & a treat as we discuss ways to rest & recover on Blue Sunday.Here is the agenda for the event: Welcome - rest is productiveWhat is self-care for M.E. discussionBed Yoga demoJoin our #MillionsMissing asksUse this link to join event:

#MEAction Town hall on CDC draft evidence review of ME/CFS treatments

Update: slide deck for town hall The U.S. Centers for Disease Control and Prevention (CDC) published a notice of request for public comments on its systematic review draft report for diagnosis and treatment of ME/CFS which will remain open until August 16, 2021. To learn more about the CDC draft evidence review and #MEAction advocacy …

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Free

Town Hall Q&A on #MEAction response to CDC Review

Attend #MEAction town hall meeting on Monday, August 9th for a Q&A on our draft response to the CDC systematic evidence review for ME/CFS treatments. -----------------Meeting URLhttps://bluejeans.com/422344930/2884 Meeting ID422 344 930 Participant Passcode2884 Want to dial in from a phone?Dial one of the following numbers:+1.408.317.9253 (US (Primary))Enter the meeting ID and passcode followed by #------------------- …

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Free
Recurring

#MEACTION ARIZONA 2ND Thursday — Support Call

Please join us for our 2 monthly meetings. We meet on the 2nd Thursday for support and discussion of treatments, and on the 3rd Thursday to work on our advocacy projects. Zoom: tinyurl.com/meactionaz Call in: (602) 753-0140Meeting ID: 949 275 8687Passcode: 4455 The purpose of the support meeting is to provide support to Arizona people …

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Recurring

#MEACTION ARIZONA 3rd Thursday — Advocacy Call

Please join us for the monthly Advocacy working group meeting. We now meet on the 3rd Thursday to work on our advocacy projects. The purpose of the advocacy meeting is to provide project updates, coordinate volunteers, and work together on current projects. Together, we make a difference.  Arizona advocates, we need you there! Zoom: tinyurl.com/meactionaz …

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NCHS ICD-10-CM Coordination and Maintenance Committee meeting

#MEAction and and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM).You can read more about our proposal in articles we've published here and here. Or you can find all the information at our …

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Facebook Live Interview with Author Jean Meltzer–The Matzah Ball

#MEAction is excited to interview ME advocate and author Jean Meltzer who just released her first novel, The Matzah Ball, which features a protagonist with ME on Friday, October 22nd on Facebook Live at 11am PST/2pm EST. We will be discussing the book, why it was important to write the lead character with ME, and …

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Free

Telebriefing by Trans-NIH ME/CFS Working Group

NIH ME/CFS Advocacy CallJoin the webinar: https://nih.zoomgov.com/j/1616894211?pwd=ZUlYdld1UHBEYStzU2JiTHZFRDc1UT09Passcode: 816676Pre-registration is not required.From: https://www.nih.gov/mecfs/eventsSee our list of questions submitted in advance to the Trans-NIH ME/CFS Working Group.https://www.meaction.net/wp-content/uploads/2021/10/NIH-telebriefing-questions-Oct-2021.pdf

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