#MEAction is advancing ME/CFS advocacy efforts through our ongoing engagement with U.S. federal agencies, including at the Department of Health and Human Services (HHS). We continue to fight for our government to do more to meet the needs of people with ME, and to ensure that the evolving Long COVID federal response includes ME/CFS. Read
The 30th of the anniversary of the American Disability Act (ADA) is fast approaching–July 26th. As a way to celebrate this momentous occasion, we are looking to share stories of how the ADA has positively impacted the lives of people with ME.We want to honor those who fought hard to make sure we have the
Exciting News for 2020! #MillionsMissing London is in Parliament Square on 13th May. London will play host to a major demonstration aimed at highlighting the plight of ME sufferers across the globe. London #Millions Missing is thrilled to announce that they are collaborating with the Florence Nightingale Museum in her bicentennial year, 200 years after
Stories Over the years, we’ve talked to thousands of people with ME. Communicating the breadth of living with ME is vital to understanding our community: who we are, what we’ve lost, what we’re fighting for. The booklet below features stories from years past.
Ellie Rushton, Birmingham UK, is setting out on a rather unique fundraising adventure. For the next six months (September to February) she will be attempting to do 1000 reps of bodyweight exercises every, single, day. Ambitious indeed! But what does it have to do with ME? “I had never heard of ME until I met
We asked you, the #MillionsMissing from ME to tell us your stories. We are grateful for all that you’ve shared with us and each other. We are proud to publish your words. We won’t give up the fight. Here is the collection of your stories from 2019. *We tried our best to include all of
Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from the person. We received heart felt stories from around the globe chronicling journeys with ME. This week we touched on parenting, aging, marginalization, and careers. Today we want to share more of your stories. While not all of these stories fit into
We are excited to bring you a special Valentine’s Day promotion of Jamison Hill’s most recent book, Something’s Wrong with Micah. #MEAction had the pleasure of having a Twitter chat with Jamison when his memoir When Force Meets Fate came out. We now get to bring this Q&A about his newest book to you. Jamison
#MEAction is excited to host an evening premier of Danish composer, Martin Byrial’s symphony’s Concerto for Strings and Organ No. 1, AKA The Gratitude Concert, followed by a live Q&A with Martin on Wednesday, February 21st at 4pm PT/7pm ET. Martin brought his symphony to #MEAction because the music was inspired by those living with
Last fall, #MEAction partnered with the Writers Guild Initiative (WGI) to offer writing workshops to twenty-five community members. #MEAction believed this partnership was beneficial to our community because self expression in the disability community is essential and writing allows us to get our thoughts and emotions onto paper. #MEAction recognizes writing as one of the
