#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth. 

We’ve been partnering with #NotJustFatigue on setting up congressional meetings in order to ask our elected officials for their support in making funding of the ME/CFS Research Roadmap a reality. #MEAction State Chapter leaders and advocacy volunteers are sharing their stories and helping many newly elected leaders understand ME, and why the ME/CFS Research Roadmap matters. 

We are actively inviting members of Congress to attend our May 12th demonstration. Do you have a relationship with one of your members of Congress that you would like us to invite? If so, please email [email protected].

And of course, our SOS messaging for #MillionsMissing and current take action page come with call scripts and demands to make sure Medicaid, telehealth, and 504 Accessibility still exists for people with ME and all people with disabilities. We have to Save our Science, Save our Support Systems and Save Our Society. That includes saving our research infrastructures, funding the roadmap, saving Medicaid and telehealth, and fighting for what is right for people with disabilities. 

There is a lot going on right now, but #MEAction won’t stop fighting for people with ME. We have to keep showing up and demanding what is right and spreading awareness.

This is all made possible because you keep #MEAction going. Please continue to take action, make a donation, and keep-up-to date on #MillionsMissing 2025 in-person and show up from home actions. 

We are fighting with you and beside you. #MEAction was made for this moment and we will continue to approach this from all sides, from all sides.