Office of Long COVID at HHS Closing

Ian Simon, the head of the Long COVID Office at Department of Health and Human Services (HHS), released the following statement to coworkers:

Dear Colleagues,

We are writing to let you know that the Office of Long COVID Research and Practice will be closing as part of the administration’s reorganization coming this week. We are proud of what we have accomplished together in advancing understanding, resources, and support for people living with Long COVID.

Over the last 3+ years, we have built meaningful connections and fruitful collaborations across the federal landscape to support this work. While our office is closing, we hope that the work we have been dedicated to will continue in some form. Updates will be shared as they become available.

Thank you again for your collaboration and commitment.

Best regards,
Ian Simon, Ph.D.
Director, Office of Long COVID Research and Practice
Office of the Assistant Secretary for Health
et al…

The removal of the Long Covid office is devastating. In a Politico article, Long Covid Office ‘Will Be Closing,’ Trump Administration Announces, a staffer said, “Long COVID impacts every facet of somebody’s life — their ability to go to school, their ability to take care of their children, their ability to go to work and get health care…So it’s not just clinical trials that need to happen. How does somebody who can no longer take care of themselves, and there’s no medical solution yet, how do they live a life?”

#MEAction is angry and saddened by the removal of the Office of Long Covid and we will be taking action. We do not know what the future has in store but we do know that we are taking action to hold our elected officials accountable. 

Next week we will be announcing our plans for #MillionsMissing on May 12th. It’s more important than ever that we unite and protect the infrastructure we all need to survive. 

This is a sad moment for millions of Americans but do not lose hope. Stay tuned for actions to take this week and for our #MillionsMissing announcement coming soon!

Facebook
Twitter
WhatsApp
Email

1 thought on “Office of Long COVID at HHS Closing”

  1. Is this temporary maybe?
    If not I am very disappointed.
    We need more research and not only Long COVID but base Chronic Fatigue Syndrome and Fibromyalgia which I have both and there is no movement in new findings that help anyone at all.!
    Plus I believe it was Fauci that rerouted funds for CFS years ago. It was clawed back but to what end, nothing!

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

redish square image with the US Capitol photo with a red overlay on top of it. The words Congress is hearing from us. Then the MEAction logo in the center bottom.

#MEAction: Congress Is Hearing from Us

#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth.  We’ve been partnering with #NotJustFatigue on setting up congressional meetings in order to ask our elected officials for their support in making funding of the ME/CFS Research Roadmap a reality. #MEAction State Chapter

Read More »
blackish rectangle with the words, MEAction Georgia Volunteer - Maggie Boxey- at TEDxOjia with the meaction logo in the bottom right corner.

#MEAction Georgia Volunteer, Maggie Boxey, Speaks at TEDxOjai

#MEAction Georgia recently had a huge accomplishment. Maggie Boxey, who is a member of the Georgia State Chapter, a Navy veteran, and a published author, recently gave a Tedx talk about her experience as a person with ME. Maggie was diagnosed a year ago but has been sick since 2020. Before becoming sick Maggie and

Read More »

SOS: Save our Science

People disabled by ME and Long Covid across the UK send out an SOS.  It’s time to send out our SOS signal, if we want to have funded research. May 12th is Myalgic Encephalomyelitis Awareness Day. On this day, the #MillionsMissing with myalgic encephalomyelitis (ME) gather to demand an increase in research and care for

Read More »
Scroll to Top