We Are Fighting for YOU Everyday! Here’s How…

#MEAction is fighting for you, each and every day. We have undertaken so many incredible projects this year, but we need your support to keep the fight going! We are 50% towards our fundraising goal, and need your help to get us over the finish line!

We are fighting for clinicians who can diagnose and treat ME – that is why we organized 20 medical education events this year, educating hundreds of clinicians about ME/CFS, as part of our #TeachME, TreatME Campaign. It is why we are working with the Mayo Clinic to educate nurses about ME/CFS. It is why our Scientific Director co-authored the Mayo Clinic Proceedings paper on ME/CFS, which hit over 100,000 views this year!

We are fighting for equitable research funding for ME/CFS – that is why we launched a petition and collected over 7,000 signatures, calling for the NIH Director to fund the ME/CFS Research Roadmap

We are fighting for access to home care services for our most vulnerable – that is why #MEAction is working with the Minnesota Department of Health to launch a pilot program to help people with ME and Long COVID access home care benefits.   

We are fighting to save telehealth access to doctors it is why we are rallying our community to call their representatives and demand they extend telehealth coverage before it expires in January. 

We are fighting for the world to understand the crisis of ME – that is why we participated in panels at The Washington Post, at the Society to Improve Diagnosis in Medicine, and at RECOVER TLC to advance Long COVID & ME drug development at the NIH. It is why we continue our robust press engagement, and why we launched a podcast to discuss everything ME-related. 

We are organizing our community – that is why #MEAction’s 13 state chapters are organizing for local change across the U.S., and were so instrumental in making our #TeachME, TreatME campaign a resounding success.  It is why we organize weekly advocacy groups to bring in the tremendous talent of our community in our fight for change.

We love and support our community – it is why our numerous support groups are constantly gaining new members and holding space for those with ME or caregivers. It is why we organize programs throughout the year to bring our community together, like our Severe ME Artists Project.  

Facebook
Twitter
WhatsApp
Email

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

red rectangle. 2025 at the top with a white line then the #meaction logo. the words, the year ahead appear in white font. below that a line of layered white dots.

The Year Ahead

As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community programs with you!  While we focus on advancing support, research, and treatments for people with ME, we’re also closely monitoring changes to public health systems under the incoming administration, and will pivot as needed to fight

Read More »
black square image with two white lines at the top and bottom of the image. Then another two white lines come out from the sides to the middle over the #MEAction logo and the words, #NotJustFatigue Video Series Elizabeth Ansell Interview.

#NotJustFatigue Video Series: Interview with Creator Elizabeth Ansell

Over the past year, the #NotJustFatigue website, created by Elizabeth Ansell, releases a 10-part, documentary style, short form video series on different aspects involved in living with ME. Titles of the videos include topics such as: You Have No Idea How Serious This Is, Nobody Believes ME, and It’s Not Hysteria: It’s Sexism. In these

Read More »
navy blue square. there are two white lines at the top and bottom of the square. The #MEAction logo in at the top of the image. The words #MEAction Georgia Voice of the Patient in coordination with the Center for Disease Control and Prevention & Emory School of Nursing.

#MEAction Georgia: Voice of the Patient in Coordination with CDC & Emory School on Nursing

Back in September, #MEAction Georgia State Chapter partnered with the Centers for Disease Control and Prevention (CDC) and Emory School of Nursing to host, Voice of the Patient: A Panel Discussion with #MEAction Georgia. This event was a continuation of #MEAction Georgia’s #MillionsMissing 2024: #TeachMETreatME programming. Erin Lee and Liz Burlingame of the #MEAction Georgia

Read More »
Scroll to Top