#MEAction UK's annual report Oct 2022 - Oct 2023

#MEAction UK’s annual report Oct 2022 – Oct 2023

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#MEAction

Download #MEAction UK’s annual report covering what we’ve done in the year Oct 2022 to Oct 2023.
Download now (PDF 5.3MB)

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The RECOVER-Treating Long COVID (RECOVER TLC) The Path Forward

September 26, 2024 No Comments

The RECOVER-Treating Long COVID (RECOVER TLC) Kick-off Meeting was Sept 23-25 in person and over Zoom. I had the privilege of attending over Zoom and Jaime Seltzer, #MEAction’s Scientific Director, represented the needs of the ME community in person and as an invited member of a panel on clinical trial design. There were many speakers

Pillow Writers Anthology, Issue 1: Near-Life Experiences Available Now!

September 18, 2024 1 Comment

The Pillow Writers Anthology, Issue 1: Near- Life Experiences is a new literary magazine in the disability community. This inaugural issue features poems, stories, and essays by 17 writers who call themselves the Pillow Writers. The Pillow Writers are an international group of writers living with the neuro-immune diseases of myalgic encephalomyelitis (ME) and Long

#MEAction UK’s email/letter to Andrew Gwynne MP

September 16, 2024 1 Comment

To: Andrew Gwynne, Under Secretary of State for Public Health and Prevention Subject: Treatment of Very Severe ME email [email protected] Dear Andrew Gwynne, Thank you for being an ally to people with ME (myalgic encephalomyelitis) and Long Covid and committing to ensuring publication of the DHSC ME/CFS Delivery Plan without more delay. We trust your