Join #MEAction’s Board of Directors

#MEAction is building a global movement to fight for recognition, education and research so that one day, all people with ME will have access to compassionate, effective care.

We are currently seeking patients, caregivers, and allies with one or more of the following experiences to join our Board of Directors:

  • Have built and led non-profit boards
  • Have scaled young organizations particularly social and business startups
  • Have raised money, particularly grant-making, private giving, foundations, and family offices
  • Have demonstrated leadership in business, non-profit, government/politics, and/or health research, policy or care organizations
  • Have organized at the grassroots level, built distributed organizations, movements, and/or networks

Based in Los Angeles, #MEAction was co-founded by Jennifer Brea, director of the Sundance award-winning, Emmy-nominated documentary Unrest.The Board consults the organization’s Executive Director in all areas including operations, communications, finances and development.

Candidates should have experience volunteering for a nonprofit organization and a passion for #MEAction’s mission. The Board of Directors meets monthly virtually and once a year in person.

Board members from the United States, United Kingdom and Australia are especially encouraged to apply.

Please email Co-chair of the Board, Pam Laird with a resume and letter of interest at [email protected]. Use the subject line: “Board of Directors 2019.”

ABOUT #MEACTION

#MEAction is building a global movement to fight for recognition, education and research so that one day, all people with ME will have access to compassionate, effective care.

We are an international organization that develops and supports a network of country affiliates, affinity groups, city, state, regional and other local chapters, and individual advocates. We are people with ME, caregivers, family members and allies.

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ABOUT OUR FOUNDERS

Jennifer has an AB from Princeton University and was a PhD candidate at Harvard in political science and statistics until a sudden illness left her bedridden. In addition to her work with #MEAction, she directed the Sundance award-winning documentary, Unrest.

Beth earned her Bachelor’s in Computer Science and Electrical Engineering from MIT. She is interested in how to best use technology to empower ME patients and achieve health equality. She worked as a developer and technical product manager for various for-profit and non-profit technology companies including the Grameen Foundation and Jaspersoft.

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Latest News

A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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