Category Tag: #MillionsMissing

Voices from Sacramento: Janet Dafoe and Ashley Haugen

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Some of you may know Dr. Janet Dafoe and her daughter Ashley Haugen through their tireless advocacy work for ME.  Dr. Dafoe's son and Ashley's brother, Whitney Dafoe, has severe ME, and is the impetus behind their efforts to raise funding, raise awareness, and raise hell. These statements were read at the Sacramento California rally ...

Show your Solidarity with the #MillionsMissing on May 12th – Protest Virtually

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The #MillionsMissing are taking to the streets in 17 cities across the world on Friday, May 12th to once again demand change for people with Myalgic Encephalomyelitis (ME). Join the protest virtually Show your solidarity for the #MillionsMissing movement from your bed by laying out your empty shoes (to represent the life ...

#MillionsMissing Will Take to the Streets on May 12th – Join Them!

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The #MillionsMissing are taking to the streets in 17 cities across the world on Friday, May 12th to once again demand change for people with Myalgic Encephalomyelitis (ME). Five cities in the UK are hosting #MillionsMissing rallies - with London taking a stance before the department of health for the third ...

Europe gears up for its third #MillionsMissing Day of Action

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Europe is gearing up for its third #MillionsMissing Day of Action set for May 12th, which is the international day of awareness for Myalgic Encephalomyelitis (ME).   Organizers from #MillionsMissing groups across Europe are working together to share ideas and prepare for their awareness events in Norway, Belgium, Germany, the Netherlands, ...

Canada uses “bird-dogging tactics” to force meeting with health minister

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Toronto: #MillionsMissing activists attended their federal health minister’s “meet-and-greet” on Jan. 14th to ask the health minister to respond publicly to their request that she announce Myalgic Encephalomyelitis (ME) is a biological - and not psychological - illness. This tactic to pin down an official with a specific question in ...

ME/CFS Advocacy Down Under in 2016

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2016 was a big year for ME/CFS advocacy. As we turn over the page to the fresh new year, the #MEAction Network Australia group reflects on some of the highlights of its advocacy efforts in 2016 ...

Winners of the #MillionsMissing Art competition

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We're excited to announce the winners of the #MillionsMissing Art competition. 1st prize went to CJ Janzen from Cambridge, Ontario who made two amazing songs about ME. Listen here: Myalgic Encephalomyelitis Song - Rough by CJ Janzen | Free Listening on SoundCloud A Song For M.E. by CJ Janzen | Free Listening ...

Update: the ongoing work of #MillionsMissing

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  Momentum continues from the #MillionsMissing campaign that was born last May. Activists took to the streets worldwide in 11 cities in May -  and in 25 cities in September - to protest their government's neglect of people with ME. While the posters are now stored away, activism has continued behind ...

#MillionsMissing Holland gets the ear of the Minister of Health

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#MillionsMissing Holland has made its voice heard in the House of Representatives.   House of Representatives member Linda Voortman has filed questions about ME based on the protest demands with Holland’s Minister of Health, Welfare and Sport, Edith Schippers. In the letter, Voortman asks the minister of health if she is ...

#MEAction US protest demands

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These demands were originally issued for the May 25, 2016 MillionsMissing demonstrations. Minor revisions were made to the demands in November 2016 to reflect community input on the definition, the primer, the name, and the need for improvements in clinical care.   You can access and download a pdf of the ...
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