Category Tag: MECFS

The ME/CFS Biomarker Rollercoaster

/ by / 3 Comments
Biomarkers are a holy grail for ME/CFS because they have the potential to help diagnose disease, track disease progression or progress and help inform which treatments might help. The need for biomarkers is immense and researchers will identify many possible ones. It is encouraging that there have been more possible biomarker reports ...

Global Call-to-Action: Help secure the World Health Organisation’s Classification of ME & CFS

/ by / 56 Comments
Urgent call to action! We need all hands on deck for a simple, but important task! The World Health Organisation (WHO) is reviewing its International Classification of Disease (ICD) for its upcoming 11th edition (ICD-11). There has been enormous concern about what was going to happen to how ME & ...

IL. House of reps shows support for ME

/ by / 3 Comments
The plight of people living with Myalgic Encephalomyelitis (ME) was heard in Illinois this week. The parent of a young daughter with ME, Amy Mooney, worked with her state representative, Michael J. Zalewski, to introduce a state resolution that recognizes ME as a tragic, disabling disease, and that commits to improving the availability ...

“Unrest” premieres in Copenhagen to major media coverage

/ by / 0 Comment
There is one more screening of Unrest at the CPH:DOX film festival on March 24th, and then Unrest heads to the RiverRun International Film Festival in Winston-Salem on March 31st. Unrest made its international and European premiere in Copenhagen, Denmark at CPH:DOX, one of the leading festivals for documentary film in the ...

Coming Out of the Closet

/ by / 7 Comments
Obviously, I still have not integrated the sick person I am with my self-concept. In my heart, I aspire to be an adventurer. In my brain, I am a popcorn popper of plans and temptations. In reality, I can do one activity and, on a good day, maybe two, but ...

Canada uses “bird-dogging tactics” to force meeting with health minister

/ by / 0 Comment
Toronto: #MillionsMissing activists attended their federal health minister’s “meet-and-greet” on Jan. 14th to ask the health minister to respond publicly to their request that she announce Myalgic Encephalomyelitis (ME) is a biological - and not psychological - illness. This tactic to pin down an official with a specific question in ...

SF Bay Area: Get Stanford Some Healthy Controls!

/ by / 2 Comments
If you live in the San Francisco Bay Area, or know any others who do, please consider asking them to donate blood to the Stanford Genome Technology Center as a healthy control. The blood will be used for multiple purposes, including in Ron Davis's ME/CFS research.  If you know individuals ...

How an Australian’s FOI request busted open a UK science scandal

/ by / 0 Comment
The 2011 PACE trial examined the effect of graded exercise therapy and cognitive behavioural therapy against standard medical care, but refused to share their data. West Australian Alem Matthees filed a UK Freedom of Information Act. The ruling released the data and further examination found glaring problems with the study ...

Living with a Spouse who has ME/CFS – webinar series

/ by / 10 Comments
The Bateman Horne Center is honored to host a free, two-part discussion panel program: “Living with a Spouse Who has ME/CFS and Fibromyalgia." Part 1 will feature husbands whose wives are ill and part 2 will feature wives whose husbands are ill in an open discussion about an often difficult ...

Australian ME/CFS doctor awarded Order of Australia Medal

/ by / 0 Comment
Well respected Australian doctor, Richard Schloeffel, was amongst those to receive an Order of Australia Medal (OAM) in this year’s Australia Day honours list, for his service to medicine in the field of chronic and infectious disease ...
Menu