Category Tag: art

Netherlands: Artists to showcase their work to raise awareness for ME

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Anil van der Zee, 38, is a former professional ballet dancer in Amsterdam. In 2007, he contracted a viral infection, Cytomegalovirus, and never fully recovered. A few years later he was diagnosed with Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS). He describes his transition from being a strong, ...

“Unrest” premieres in Copenhagen to major media coverage

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There is one more screening of Unrest at the CPH:DOX film festival on March 24th, and then Unrest heads to the RiverRun International Film Festival in Winston-Salem on March 31st. Unrest made its international and European premiere in Copenhagen, Denmark at CPH:DOX, one of the leading festivals for documentary film in the ...

Julie Rehmeyer: Hope and Despair in Through the Shadowlands

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Recently, #MEAction sat down with Julie Rehmeyer to discuss her new book Through the Shadowlands, her op-ed in the New York Times with David Tuller, and next steps. What made you embark on a project like Through the Shadowlands? I’m a writer, and it was a big experience I was going through, ...

ME/CFS Advocacy Down Under in 2016

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2016 was a big year for ME/CFS advocacy. As we turn over the page to the fresh new year, the #MEAction Network Australia group reflects on some of the highlights of its advocacy efforts in 2016 ...

Jen Brea’s ‘Unrest’ to Debut at Sundance Film Festival

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After years of work and hundreds of hours of footage, Jen Brea's documentary, now entitled Unrest, is ready for its debut.  The film will be shown at the Sundance Resort as part of the Sundance Film Festival in January 2017; Brea's Unrest was selected to premier as one of the ...

#MillionsMissing Crafts Competition

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#MillionsMissing Crafts Competition We want to have fun while we work for equal treatment for ME sufferers! Win prizes! Submit photos and pattern of a crochet - or knitting project with the #MillionMissing logo. ( Also with a picture of the finished product). We pick three winners receiving a prize ...

Contribute clips to L.A.’s #MillionsMissing Video

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Last October, I released the short documentary The Last Great Medical Cover Up to a widely receptive audience. Now, I am looking to alter and expand the film in time to promote Round 2 of the groundbreaking #MillionsMissing movement. And I need your help to make this new and improved ...

Hold a Forgotten Plague Screening!

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Forgotten Plague, a documentary that a journalist at The Huffington Post called "a must-see documentary" is now available through ordering a DVD or streaming through Amazon Prime. Much of the documentary's quest is to educate people on ME/CFS, especially those in the medical and health fields. Getting the film in ...

Jennifer Brea gives rallying TED Talk

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On June 27, Jennifer Brea, #MEAction co-founder, filmmaker, TED Fellow, readied herself to speak in Banff, Canada at TEDSummit 2016.  The process of preparing can be described as grueling for anyone, much less for someone with ME: Brea had spent weeks writing and fact-checking the talk with a committee from TED, and now ...

Lift Your Voice, Share Your Story – BHC Patient Voice

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Patient Voice - a special place online for members of our community to share their stories, art poetry, photography and music. We highlight the strength, joy, humor and beauty that can be found in a life changed by ME/CFS. Our goal is to lift your voice a little higher and ...
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