Here is a growing list of reports, fact sheets, and talking points that might be useful in your advocacy. Please note that inclusion does not mean endorsement or agreement on the part of #MEAction’s leadership or membership.
U.S.-focused resources useful for preparing for congressional meetings, agency meetings (NIH, CDC, HHS) and writing articles or editorials:
The Institute of Medicine 2015 report on ME/CFS – a good summary of the research. Also searchable for information on a specific topic.
The Big Data Study out of Stanford University shows that the energy-generating process in cells is shutting down in ME/CFS patients. This means that cell by cell, patients have less energy than healthy individuals, Feb. 2017
Scottish Good Practice Statement on ME-CFS – this set of guidelines informs doctors of the potential adverse effects of graded exercise and the use of cognitive behavioral therapy not as a cure but as a coping tool, similar to other chronic illnesses.