Fact Sheets


Learn about ME. Find educational tools for your advocacy.


GENERAL

What is ME?
Diagnostic criteria: Canadian Consensus Criteria | International Consensus Criteria | IOM ReportIACFS/ME Clinical Care primer | Pediatric Primer


SCIENCE

#MEAction ME/CFS Research Summary – Full Summary

#MEAction ME/CFS Research Summary – Highlights


UNITED STATES

#MEAction congressional One-Pager – presents facts about ME/CFS and why US health authorities should fund it at a level commensurate with disease burden

Prevalence spreadsheet that shows the number of people in your state with ME

Disease burden of ME/CFS – based on research paper by Dimmock, Mirin & Jason

Talking points on ME

#MillionsMissing Fact Sheet

The Institute of Medicine 2015 report on ME/CFS – a good summary of the research. Also searchable for information on a specific topic.


UNITED KINGDOM

Scottish Good Practice Statement on ME-CFS – this set of guidelines informs doctors of the potential adverse effects of graded exercise and the use of cognitive behavioral therapy not as a cure but as a coping tool, similar to other chronic illnesses.


AUSTRALIA

Australia Fact Sheet


ME in the News

FILM & VIDEO

Documentaries: UnrestForgotten Plague Voices from the Shadows I Remember ME
Short educational video content: #MEAction playlist | TED Talk
Advocacy videos: Activist teach-ins
Radio: TED Radio Hour | Science Friday


HISTORY

Thirty Years of Disdain: How HHS Buried ME by Mary Dimmock and Matthew Lazell-Fairman

Osler’s Web


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