Category: How-to Guides

Equip yourself to fight disinformation!

Over the last many months, social media platforms like Twitter, Facebook, and YouTube have been flooded with disinformation about COVID-19. We wanted to make you aware of the problem, equip you with tools for how to recognize and respond to disinformation, and enlist your help keeping our community safe. According to numerous reports, much of this disinformation comes from organized

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Send your stories for London #MillionsMissing

Exciting News for 2020! #MillionsMissing London is in Parliament Square on 13th May. London will play host to a major demonstration aimed at highlighting the plight of ME sufferers across the globe. London #Millions Missing is thrilled to announce that they are collaborating with the Florence Nightingale Museum in her bicentennial year, 200 years after

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Host a Postcards to Doctors party this holiday season!

Host a Postcards to Doctors party this holiday season! And announcing: #MEAction’s first Pinterest boards! Together, the #MEAction community has made the Postcards to Doctors initiative an incredible success: there have been approximately 5,500 requests for postcards to doctors across 43 states! We are so thankful to see people across the country step up to

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#MEAction Launches its U.S. State Chapter Initiative

We’re so excited to announce we’re growing our community’s impact through the expansion of #MEAction USA’s formal State Chapters.  #MEAction USA’s State Chapters build local capacity around volunteer engagement, congressional outreach, local and state advocacy, and medical education, and support awareness raising efforts for ME. State chapters also act as laboratories to incubate new ideas

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What ME Activists Can Learn from the AIDS Crisis

I read “How To Survive A Plague: The Inside Story of How Citizens and Science Tamed AIDS” by David France to learn lessons from the AIDS movement that could help ME activism, and to summarize it for people without the energy and/or time to read it. The book tells an amazing story but it is

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How to Build a Protest

Learn from the success of the #MillionsMissing protests that galvanized dozens of cities around the world to take to the streets and demand their governments stop the neglect of people with ME. Read the full guide here.  

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City Proclamation for ME: How-To Guide and Case Study

Timbre Livesay and Mary Dimmock contributed to this article. This is an outline of the steps a California ME advocate, Mark Camenzind, took for getting city proclamations for ME. Below the steps is a template you can use for your own city proclamation. Feel free to adapt either for your city’s needs. As this is

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State Resolution for ME: How-to Guide and Case Study

Rivka Solomon and Mary Dimmock contributed to this article This document includes the steps ME advocates are taking to get a State Resolution for ME passed in their State House (aka State Assembly or State Legislature). It also includes a draft template of a resolution for you to use in your state. Why pursue a state

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Engaging People with ME as Partners in the CRCs

The National Institute of Health’s RFA for ME/CFS Collaborative Research Centers breaks new ground. For the first time, the funding agency is strongly encouraging researchers “to establish partnerships with patients groups and solicit their input” as part of their research plan. #MEAction assembled a team of volunteers to assist researchers in thinking about this, and

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